update...

okay so here is the update..after 3 hours at the doctors..we have an appt with the Urologist for next wednesday at 315pm..

We're debating on whether or not to take jon back off the effexor..this may have added to the problem..also were going to watch the cathing and do it more then every 4 hours..we need to rule out what is causing the dysreflexia..
were not sure if he's have badder spasms due to the effexor or if his bladder is swollen or if he has a cyst in the bladder..it could be a LOT of things..

Ive learned that its VERY important to DO YOUR HOMEWORK and know what your talking about BEFORE you go to the doctors..to not rely on the info the doctor has..our primary care physican isnt very familiar with autonomic dysreflexia..so we had to kind of guide him thru it..i didnt think we'd go anywhere today other then get an appt with the urologist..which initially he was going to get an appt that WASNT for 2 weeks!!! i immediately told him the urgency and that this could lead to a stroke or death..its IMPORTANT that we FIND THE ROOT of this dysreflexia..were not willing to wait 2 weeks to rule out or "just see" if the bladder is the issure or not..

so anyway- he was able to move the appt up to next wednesday instead..which obviously im MUCH happier about!!

so it was either go thru that all day OR go to ER and have the same thing happen there..he seems to only have the pounding headache and his blood pressure sky rocket when he has bladder issues..like when he needs to be cath'd..so thats what we'll work with and we'll decide together if he should or shouldnt go off the effexor..

PLEASE pray that all goes well thru the nite..that the caretaker will stay awake and refreshed..she was able to sleep from 11am-5pm so she should be okay..pray that we find the root of the dysreflexia..its SOOo serious and not something you "just wait" to see what happens with...

im SOOOOOOOOOOOOO grateful for the amazing POWER of technology!!! im SOOOOOOO grateful as my PB blessing states "you've been blessed with a keen mind"..i will forever strive to live my life righteously so that i will be given as promised that blessing of a keen mind..because of that i have NO DOUBT thats what helps me thru ALLL of this madness..knowing what questions to ask, what things to look for, what things to learn about, what things to pay attention too..the ability to learn quickly..i know FOR SURE are because of my PB blessing..im so grateful..

as far as his pain goes..he's down to a 6 or 7..which is why were worried about taking him back OFF of effexor..his pain may flare up again..

THANK YOU to those that have watched my girls today-- im also learning that this is DEFINALTY a day by day thing..im so grateful i have friends that can take my girls into their homes!! thank you!!!!