getting ready for the night...

right now jon is getting ready for the night..i think he had a fairly good day..i believe he got a lot done with his dad too..
we made spaghetti for dinner real quick then jon started his bowel program..eunice from kenya the other 24 hour caregiver came at 8pm sharp..she's just jumped right in and doing her thing...
he's been really tired today..so he's looking forward to a good rest..he said his pain is down just a tad..but not much..but he was happy he spent the most of his day in the wheelchair again!!
jon and his dad played a game of pollyana - jon won! WOO HOO!!

thanks for your prayers- im so grateful he got a blessing last nite and that everyones prayers are working for him..yesterday was SO hard for all of us!! so thank you for this small little relief we've had today..i hope it keeps getting better..im SOOO sorry that my blog is always about how difficult and painful it is for jon..i hope its not depressing..im sorry im not good at always making it positive..i know that the days ahead are going to get better...im really realizing that some days are good and then some days are bad..it doesnt get good each day..its like 3 steps forward and 1 step back...

THANK YOU for those that leave posts!! i love getting them and reading them!!! thank you for EVERYONE for what they are doing..im sorry im not able to put names in here of what people are doing..it was getting a little uncomfortable for some people that were being named..so ive opted to just not name anyone who's helping - but you all know WHO YOU ARE!! and i thank you soooo much!!!! keep praying for jon..that the Effexor WILL WORK with his body..it will provide the relief that we are STRIVING to find...from what i understand..he's still on low doses of all his meds...he could go higher..so we'll see what happens..tomorrow he has a follow up appt with Dr. Kounang who was the doctor over him during his stay in rehab...hope that all goes well..jon will be a little bummed that he's still in the same condition as when the doctor released him...but such is life..thats the way its going for us right now..we'll do what we can..thanks again!!