Thursday, May 04, 2006

going for a new plan...

well..leave it to me to figure out whats wrong with jon..it IS central pain...so now were going to take jon off ALL meds except for the nuerontin...which he's having 600 mg 4 times a day, baclofen at 10mg 4 times a day..and then we'll switch Norco to Dilaudid...then we can use that as a base line to see how he's doing...

essentially..he'll always have pain it sounds like..so hopefully we just find something that can manage it..so that he can keep rehabilitating..

we very seriously feel that the pain WILL subside..its just a matter of time..we cannot and will not deny the blessings that were given immediately after his injury and before his surgery..there were blessings given..we will not forget those..we will utilize our faith and prayers to remember those blessings..they are very real..we do not doubt them in anyway..

we HAVE to remember the CONSTANT change that jon receives in his body despite the pain..he continues to get more feeling back..that has to mean something..the more change you see sooner..the better..

PLEASE pray for jons pain..that the doctors will DO THEIR RESEARCH and find what will work with jons body..that jon will communicate with them what's working and what is not..we know the pain will never go away..but if we can get it down from a 9 to even a 7 would be great!!!! Hang in there..we can all do this together...

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