Monday, May 22, 2006

really worried...

right now both jon and myself are really worried for tomorrow..he's been in SO much pain today..solid 8.5 all day today he said..he only lasted one hour in his wheelchair today..we had to move his bed into the livingroom again so he could celebrate rachel's bday with us..

we cant seem to figure out why his pain just gets worse all the time..were going to take him back off the effexor and see if that will work to where he was again..atleast back down to a 7 or 6...
the pain management specialist was not in the office today..i left a message..i will FOR SURE call in the morning to figure out a plan..
i hate seeing him in so much pain like that..and its SO worse when someone comes in and asks "how ya doing?" and he says "GREAT!" i just want to scream inside!!! UGHGHGHG anyway- so just know..if he says great..its not always great..you can watch for signs like..he doesnt talk to you very much..has short answers..his arms are close to his chest, he's shivering like he's cold..those are all very clear signs that he is in pain..he would never tell you that he hurts too much to visit..so if you notice these signs..please make the visit short...

ive just watched jon lay in pain all day today..even his face is blotchy red..he's been shivering A LOT today..hands constantly on his chest curled up..all those signs up above.. he even tells me he's worried about tomorrow..what will happen..

regardless of all this..rachel had a wonderful bday!! dont you feel great when you get your child that ONE present they've been wanting!!! i got the biggest hug from her!! she went over and squeezed jons hand so hard - it was touching..thanks again wendy for putting that together for me..

well its time for me to start the bowel program with jon..PLEASE pray for the pain to subside and for us to figure this thing out...

1 comment:

Anonymous said...

Christina and John I want you to know that I am praying for you every day... I am so sorry that John is in so much pain.. and Christina, that has got to be so hard to watch. I have read your blog every day since the accident. And I have cried many times for you. I haven't ever met you- I live in WA state and just got to know who you are on MC. I have always been impressed with you and your strong testimony. I too know that Christ is real. He knows you and He does want you to be happy. I have been reminded as I read about your experience, what really matters in this whole life experience. I looked at the pictures from your fundraiser and I just cried and cried as I watched you wipe the tears from John's face... I can only imagine the feelings you go through..
I have little kids about the same ages as yours, and my heart goes out to them.. but I believe that they too were prepared for this.. maybe before they got to your family.. they are going to be okay!
You are great both of you, Christina, stay strong...I wish I lived closer and I would help you- take your kids or give you a break-
Even though you sound like you have soooooo much on your plate and I would wonder how you do it all, you seem to be so focused and determined to do your part... stay strong- you are loved!
lauralee