Friday successful at Pain Management Appt.

we made it to the pain management appt yesterday..it was about a 45 minute drive..i was SOOO worried about jon passing out..i had to keep looking at him and watching him carefully..he made it there and back okay...
the doctor was fantastic..he was a young doctor..about our age..he had a 7 year old daughter..he was VERY optimistic about controlling jons pain and very excited to see jons progress in just 8 short weeks!! he too believes its the nerves all wakening back up..the plan now is that he will try effexor..its an antidepressant..he's already got him started on it on a trial basis..if it works then we'll get some at the store prescription style..eventually he'll start coming off the baclofen too..so thats great news! and he'll come off the dilaudid too - which is even GREATer news!!! so were excited to see if this will work for jon - PLEASE pray that it does!!
sadly my caregiver's grandmother passed away last nite- so again im scrambling for help - AS USUAL!! i dont have anyone for tonites shift..i do have someone from sunday nite and monday nite shifts only..then eunice from kenya said she'd come back tuesady nite at 8pm..so we'll see..so now im not able to have anyone again during the day ..we'll just have to see how it goes - but im pretty nervous! all four girls and jon alone here at home..
today is rachel's surprise bday party..i have someone coming to stay wiht becca and anna so they can nap..then we'll follow rachel and sarah to her bday surprise swim party..so that will be fun for jon to participate in..
brother and sister kennedy will be here tomorrow morning at 8am to help get our family and jon ready for church which starts at 9am..hopefully that all runs smoothly! i will do my best to prepare everyone tonite for tomorrow morning..i think that i will have to be up all nite do give jon meds and cath him..the girl that they are sending over said she's never cath'd before - GREAT! so hopefully i'll have enough energy to go to church...so nobody make fun of me if im sleeping..because i'll only have had a few hours!!!
the girls are doing well..they have been SO nice to eachother lately...especially the older ones..i feel prompted to spend one on one time with each of them..that always helps to bring harmony in the home and open the lines to communication..so i will work on that this weekend and thru the week..i cant believe they are out of school on friday at 1230pm! YIKES!!!
my long time friend wendy (terry) along with her mom will buy and wrap and mail all of the girls' presents for bdays - i just send a list and they take care of it - SO HELPFUL!!! that takes a load off my mind!!! rachel's packages JUST arrived! HOW FUN!! im so grateful for those that follow the promptings they feel in regards to helping me..i REALLY wanted to still do something for their bdays..its not fair that this new situation should take away ALL thier childhood..i know thats something we have to work on...i feel HORRIBLE that they cant be kids anymore..when i hear people say "well they are just gonna have to learn how to grow up - or help out more" it makes me hurt inside..nobody should have to have their childhood taken away ..or extra heavy burdens placed upon them..and while yes i do understand "it will make them stronger"...its still TERRIBLY sad for me..
i was able to get out last nite with the girls..i think i just kept making everyone yawn the whole time!! but it was nice for 2 hours to get out for a bit..
well i now need to get jon out of his bed and into the wheelchair..im home alone so i may call for someone to come help me real quick..