Special Day for all of us...

Today was a special day for all of us..jons family came, todd his family, mom, dad, scott, kellie, katie, and seth..we enjoyed a yummy dinner and yummy desserts..jon really enjoyed being around family like old times when we had everyone over for fast sunday's once a month..
we had to laugh because EVERYONE wanted to give jon a "pressure release" that means they have to tip jon back in his wheelchair onto their laps on the couch..i had to tell everyone to calm down - no fighting- everyone will get a turn!! he has to have it every 30 minutes anyway!! it was so funny!!!
Jon ended up eating his WHOLE meal by himself again! the family was SOOo excited to see him do that!!!
then he got tired around 7pm so we rolled his bed in thru the french doors..so he was half way sitting in the office and half way in the family room with us all..he didnt want to be stuck in his room with no one there- WHAT a BLESSING it is that jake and sheldon put those french doors in - it was JUST PERFECT!!! i will be so forever thankful for those two men!!!!! thank you thank you thank you!! jon was able to just doze off when he needed to and we all got to just keep on chatting away like he was right there in the room - how wonderful is that!?!?!? it was just awesome!!
the kids were having a BLAST playing tower of terror in the garage with dad's wheelchair and commode chair..they would duct tape the kids into the chair like they were going on the ride..then swirl them around the in the garage- it was SOO funny! rachel is really the best cousin to have to think up of things like that!! she said she wants to earn money that way - giving kids a ride on daddy's wheelchair up and down the street- i said ya i bet they'd pay 25 cents - she said WHAT? only 25 cents!??! i was thinking like a dollar!!!! --- oh well..guess thats inflation for ya...
we were able to have someone come out and fix jons bed...it didnt seem right..the air mattress part..they ended up having to give him a different mattress..its worked great now..only when the boys unplugged it to swing him back into the office for the night-- it TOTALLY deflated!! so i had to get him out of the bed and onto the couch for a bit while his bed reinflated again..hopefully it works thru the night...
all in all it was a GREAT day - i think the family now understands where my needs are and how they can help...were so blessed to have family on both sides to rearrange their schedules and life to help us out in this desperate time of our life..
i feel im doing much better now..the family got to see HOW HARD it is with becca here..she's screaming all the time when im not holding her 24/7...i decided my new thing was to put her on the stairs and tell her..no screaming..you can come when you stop screaming..it took a bit..but she totally caught on..so that will be my new thing now to see if i can solve that problem - i could scratch that off my to do list!!
its really hard for me when people ask "what can i do to help"..i guess i have to think for me..if this was someone else..and i dont know if this is just me --but i feel like i wouldnt wait to be asked maybe..i would look at their situation and say..okay they need this and this and this..and then put people to work..thats something im struggling with --there are SO many things i need..and so trying to articulate and tell people what it is -thats difficult for me..because i feel that they might not be able to help me in that capacity...and then i feel uncomfortable..im not sure if that made any sense to anyone..maybe i just need to ask more..i feel like for me i keep thinking isnt it obvious what i need help with.. or do people just not know what it is unless i say something...again i dont know if that made sense to anyone...
for example im so grateful for leisa how knew i'd want my home to be put back together like it was for jon to come home and just did that on her own with her husband pete..im so grateful for tracy who knew i'd want my home to be clean before jon came home and made that possible..im so grateful for teresa who just knew i'd need help with the girls and made that all work out with ladies in the ward..im so grateful for the relief society who knew i'd need dinners brought in and i need them NOW more then when he was at the hospital..im so grateful for louann who knew i'd need help getting rachel to piano lessons on tuesday afternoons- so she just comes and picks her up and brings her back for me..im so grateful for my sister heidi who knew i'd need help with food..so she's set me up with albertsons to get cereal and crackers and juice..basic things i'd need for the children..im so grateful for celesta who will call on her way to the grocery store asking how much milk, eggs and bread i had in stock..
i REALLY dont want anyone to feel like they aren't helping...i guess what i want to say is..if you feel inspired to help me PLEASE DO!!! i keep praying for Heavenly Father to help me..and i know i REALLY cant do this alone..by myself..its SOO hard to do this and know what it is i need..because i need SO MUCH and its SUCH chaos..that its even HARDER to pin point what it is i need right now...and again i REALLY dont want to offend anyone or hurt their feelings in ANYWAY..i just felt prompted to just put my feelings and emotions out there..i hope everyone understands what my intentions are..i guess maybe to not feel hurt if when you ask me..what can i do to help..and i cant tell you what it is..that you feel like i dont need your help or dont want it..it DO need it and i DO want it..i just cant pin point it very well..and maybe thats just something im suppose to work on about myself..
anyway - well im feel like im just beating a dead horse now!!! please know we are SOOOOOOOO grateful for the help we receive from everyone, family, friends, people we dont even know..its so overwhelming the support and love we feel...please continue to pray for jon..that his body will continue to function properly...his pain level has gotten down to a 6!!!!!! im SOOO happy!! he spent his 3rd day in the wheelchair all day..and again today with NO abdominal belt!!!!..little by little..he's getting better!!! he eats a lot now..he feels hungry now..its just so great..please pray that his spirit will remain high and his positive attitude will stay intact..also please pray for me..that this new caregiver will work out and i'll find a routine and a balance..and ESPECIALLY that things will fall into place for us..thats so important right now..
he's in MUCH better condition now for visitors..so ANYONE that is interested PLEASE feel free- PLEASE call our home first to make sure..but more then likely he'll be good..