Thursday, May 11, 2006

Had a good nite..

Jon had a good nite here at home..we finally got to bed around 11pm...i think everyone was wiped out!! Kim woke up every 2 hours to rotate him and cath him when needed...poor girl!! shes been AMAZING for us!
we had two caregivers come get trained by kim and myself today..we picked one girl to work the rest of today, and friday then saturday morning till monday morning the other girl will work..then this girl will come back monday morning thru thursday morning..thats when i will need to decide how long i really need a caregiver for...im STILL looking for anyone that is able to help me..if you have any ideas PLEASE EMAIL ME!!
Today jon hasnt felt good at all..he's been really nauseated and really tired..he only spent one hour in his wheelchair..were hoping its just because the medication..since they up'd it so much..PS JEREMEY POULSEN EMAIL ME...hopefully tomorrow or the next day he'll be back to his old self...although he's miserable he LOVESS being home!!
im thinking i seriously need a secretary to help keep me on top of things!! its out of control in my head..as much as i try to stay on top of it all..i keep adding things instead of crossing them off i feel like!! example..social security already denied me w/o my full papers being filled out which i've filled out but still need to get over there to re apply..ugh - what a pain!
Our highlight for today was the girls got a new black bunny - i know i just need to shoot myself...its actually been fun for them..they've all just been outside playing with it..im waiting for the "were bored with it can we get something else!??!" UGH! im really NO PET FAN WHATSOEVER..so i told them they are TOTALLY incharge of it!! im only going to tell them- time to clean it- but im not cleaning it myself..they get too-- we'll see how long that lasts!!! i think i like it because its like a REALLY QUIET puppy!! it hops around the yard, they can hold it, feed it, clean up after it, and it DOESNT BARK!!!
well its getting near bedtime for the girls, time to round them up and get started on getting them to bed...thanks again so much for your constant prayers..they are still so desperately needed...pray that his body will acclimate with the new doses of medication..he really wants to get back to life again and not spend it in bed day after day having someone care for him-- who wants that kind of life anyway! we know he's capable of it- we just need his body to catch up with the medication..so pray for that very specific thing...
also we are in need of LOTS of kitchen size trash bags...were CONSTANTLY washing white bedding and towels for jon over here..so the trash bags would be GREAT!! also some sort of container type thing we can put linens in and stock all of his meds in and all of his supplies in and etc thats lying around in the office..tracy THANKS for the things you bought- SO HELPFUL!!!
i forgot to mention that jon ate his WHOLE MEAL last nite ALL BY HIMSELF!!!! can you even believe that!!!!!!!! i was SOOOO excited!!!! thats so great of him! im so proud!! he'll just get better and better- i just KNOW it!!

1 comment:

Anonymous said...

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