Saturday...

Jon got settled into bed..as well as the rest of the family..we have a system set up where i am up at 2am and 6am to rotate jon and give him med's...i feel myself getting crankier by the day!! i havent slept well now for 8 weeks and i think its getting to me..
Jon slept well thru the night..we had a caregiver shift change..we'll see how this new caregiver works..i'd really like to hire someone full time that can help me with both jon and the girls..but im not sure if that's possible..thats an extreme amount of work to ask of someone..so we'll have to see..im not sure how that will all work out..
Amy Novak--thanks for the beanie!!! it really helps to keep his body warm-- it will be roasting in his room and he's freezing..so the beanie helps to keep the heat inside his body..so thanks!
We have no real plans for today..Sarah has a bday part at 11am..and thats about it..

i ask that you pray for me at this time..im really struggling to stay strong..its extremely difficult with the demands of jon and the demands of 4 children..i feel like im constantly being pulled in 20 different directions..if im helping jon..then becca's screaming cuz im not holding her..if im holding her..then jons waiting for me to help him..it can get to me sometimes..i know right now this is satan working his power to make my life more frustrating then it already needs to be..its to the point that when i see old pictures of jon where he's standing..it makes me want to scream or cry or just do both..so please pray for me..with Heavenly Fathers help..ill get things pulled together..