Jon did GREAT!!

jon did great!!

The pressure is on!

Jon is feeling the pressue with his Talk he is giving this sunday, he had plans to write it all out today only to realize that for SOME REASON our laptop that has his voice software on it KEEPS FREEZING AND SHUTTING DOWN!!! rghghg so irritating!!!
so dad's laptop is coming up tomorrow that also has the software so hopefully he can get that done tomorrow..
he also has a few articles he has to write and a magazine layout to put together before jan. 5th the deadline to hand it over to the print company! YIKES!! he's getting a little stressed out and the pressure is on..
he hasnt been feeling well the past couple of days..we think its due to his backing off the baclofen AND the dilaudid..hopefully that will subside and he'll be okay.

He's IN!!!!

Well we received a phone call today from project walk...he's IN!!! YA!!! jon is SUPER EXCITED!!!!!!!!!!!!! he will do a week long trial starting jan. 9th, then on the 11th and the 12th, then again the next tue/thur ...then we'll go from there..

if you want to be inspired and motivated like jon is..we HIGHLY reccommend that you check out the website at www.projectwalk.org..its amazing!

well- just wanted to update everyone..

faxed the application

www.projectwalk.org

well we have filled out and faxed our application into project walk, i suppose we'll receive an email or phone call for an interview...cross your fingers and say MANY MANY prayers for this- jon is SOO motivated that it brought him to tears...he's backed off the baclofen AND dilaudid (which he's been working on before)..

i will keep you posted on the progress of project walk..

it is in carlsbad-so we will have to drive there for the sessions...

speaking of dilaudid- he's been soooooooooooooooo cold...and yesterday he said he wasnt too cold..he realized that maybe it was his body coming off the dilaudid-so lets hope that was it and that he's not soo cold all winter long!!!

YA for jon!

after watching, reading, and getting frustrated that the past information ive posted has not been offered to him or mentioned by any doctors..he's DECIDED to come off the baclofen!!!!!!!!!! im so happy!! he has been SOOO hesitant about doing so - thanks robert for you help-im not sure who (family or friends) or just having him watch and read about it-but he's decided to come off of it completely..
he started today already..he's been on 20mg 4x's a day..he's backing them down to 10..then he'll go off completely..SUCH good news-and it will be perfect timing for the research project he's doing come january..

he's REALLY motivated and inspired to work hard..we're so grateful for the progress medicine has made AND for the idea of "people with SCI can be in RECOVERY not REHAB!"

very interesting stuff

i continue to effortlessly gather more and more info to try to help jon..this is what i found today..check out all these people with a c5 injury--it sounds like having spasms is a good thing-which jon has-
he has noticed that when he spasms he is able to MOVE!! so we may think about getting him off baclofen to get more moving happening!!

http://projectwalk.org/clientLocatorNew.php

EXCITING NEWS!!!

check this website out!! EXCITING NEWS!! this is what jon will be doing for 10 weeks (2 days a week) in january..

http://news.yahoo.com/i/2614

then scroll down to Supermans Foundation and Legacy

Friday..

Today has been good..the past few days have been good for jon, he has ANOTHER UTI which i need to run to walgreens to pick up antibiotics for that..
i just gave him a haircut and trimmed his nails so he's looking and feeling better..

my dad put on the emtion wheels so he's MUCH more mobile and can get in and out of the front door all by himself..he likes the freedom..he's been outside on the sidewalk with the kids..

we went to the cal stat LA and were REALLY excited for the possiblities there..it will be a 10 week session (mondays and wednesdays-i will take him mondays and robert will do wednesdays-i will need help on mondays as we will need to leave the house by 1230-1pm and will not return until about 7 or 730 due to traffic-UGH! if anyone is able to help me on mondays it would REALLY be helpful and again its only for 10 weeks)
they will exercise extensively with him AND put him on the "gait" machine, where they strap him in and he is suspended by the ceiling and there are two guys working his legs and one on his waist and he walks on a treadmill..so that was encouraging! they said there are NO LIMITS as to what they will do with jon, if he wants to try something-they'll do it..thats also encouraging..so its like therapy for free..we wont have to pay for it-which right now is helpful too!! so we are REALLY excited about this prospect and what it will do for jon..this is the 5th year they've done this research project and were excited to be apart of it..

we may also be taking a "road trip" at the end of this month to Danville, CA to chads house- his oldest son Aden is turning 12 and will be ordained a deacon, all the family will be there and so we may try to make it happen for us...it will take TONS of work on both me and jon, but its family! so with a lot of help-we hope to be able to go and to do all that needs to be done when we are there.

well that is about the update here- i have ALL my xmas shopping done AND wrapped-just need to figure out what to do for both sets of parents-our family does xmas ornament xchanges vs gifts (MUCH easier for all of us!)so i even have my ornament picked out and here at my house ready to give..

hope everyone is enjoying their holidays!

jons being interviewed for research project

jon is going to be interviewing this wed at University of Los Angeles at 12noon for a research project- here is the link:
http://www.robomedica.com

i will need to find someone who can be at my house for most of that day on wednesday, we will need to leave around 10 or 1030am the session is only for an hour then we will return home between 4-5pm hopefully!

jon is doing well! he's been asked to speak at our ward's xmas eve sacrament at 9am- anyone who would like to come - FEEL FREE! he'd love to see you there! i plan on inviting a lot of our neighbors who supported jon at the fundraiser- i think it would be great for them to hear from jon..

jon and i had a date saturday nite with our friends- a quick dinner which was fun, we also had fast sunday with jons family last nite- which is always fun..he's doing well, working on getting himself onto a schedule, staying in his chair longer, all and all he's doing good!