ill be up all nite..

Tonite i will be up all nite tending to jon..the person that the agency was sending over wasnt going to get here till 9pm..and doesnt know how to cath someone..so i'd end up staying awake to "teach" them anyway - no sense spending money just to teach someone!! SO that means i get to get up every 4 hours to help jon..PLEASE pray that i get sufficient sleep during those times im asleep!!! ive already managed to get everyone fed, bathed, nails painted, sunday clothes layed out and ready for bed..now i will spend the rest of the night helping jon with the bowel program and getting him settled in for bed..im hoping i might be able to atleast wash his hair..im by myself so we'll see how far i get! yikes!!
today was a good day..jons pain level SURPRISINGLY is down to a 4 or 5 he said!!! were hoping his bowels function today so that that kind of pain is gone..otherwise he's doing rather well!
we made it to rachel's surprise bday party- she was totally surprised!
we do have someone that will be here tomorrow nite at 8pm to 10am..and then that person will come back from 8pm-10am again..then hopefully eunice will still come back and be there tuesday by 8pm..ive been under TONS of pressure to make things run smoothly..this is the most difficult thing EVER - to be pulled in 30 different directions and feeling TERRIBLY guilty because im not able to help jon or help or be with the girls..leaves little time to even think about myself! its just something im learning to live with..while i do take 15 minutes to escape on the computer..were all trying to work together and THANKFULLY the older two are being sooo good!! i feel like all of you are praying for my 2 older ones to be good- it must be working!! they are so helpful!! ive tried to teach them instead of taking things away that the little girls are playing with..that they older 2 might not want them playing with..instead of taking and saying NO thats mine!! i've taught them to slowly take it and say "no thank you" and if needed give the younger two something else- i cant TELL YOU how wonderful that works!!!!!!! if there is any struggle- all i have to do is say - "say no thank you" - and they do - rachel especially is being so helpful to me with the girls..so thank you for praying specifically for them..i really feel and can see the effects of their behavior!
well its now nearly 8pm..i need to start getting jon ready for his bowel program, get that done..switch to get the girls into their beds for the nite, run back downstairs to finish jon with his program, try and wash his hair, run back upstairs to make sure everyone is in bed, run back downstairs to get jon transferred back into his bed from the wheelchair, get him cath'd, meds and ready for the night..then pick up the house, do the dishes, set 2 alarm clocks, say prayer and fall asleep..wish me luck!!