made it thru the nite...

at 1030pm jons blood pressure was high with a headache..eunice cath'd him and he came out with 800 cc..which is a lot..then it went back down..

eunice was cath'd him at 1230, 3 and 7am..he seemed to be okay thru the nite which is great...

this am he is in pain..its a different kind of pain..we decided to go ahead and come off the effexor..so now he's probably having the effects of coming off the drug..his pain is like an "icy kind of pain" he says its SOOO hard to try to explain..im looking at him now its 930am..and hes just lying in bed with sheets over him...he feels really cold...his eyes are shut..his comment this am when i asked how he was doing was "im still alive"...i can only imagine what he's going thru right now..

its incredibly hard because we havent been able to manage his pain..it would be a completely different story if he were up in his wheelchair moving around and about..but he's just not doing that..its almost like living with a terminally ill person..i fear for his life everyday ESPECIALLY when he signs of autonomic dysreflexia..because the average life span of a SCI patient is only 10 years..every nite i've been crying because i know of this fact..i think if christopher reeves and thats about how long it was for him..BUT i then DO think of Patriarch Ruston, and how he's going on year 17!!! that gives me hope!!! last nite i decided to have sarah come into my bed..i slept the best i have since jons been home! i think just having someone else in my room makes a WORLD of difference for me! i didnt cry as i went to bed..it was wonderful!!

please pray that his body will come off the effexor and that his body will return back to normal..and that we figure out whether it was the effexor or if something is going on with his bladder..we have to really keep a watchful eye on him..