Made it thru monday...

Well we seem to have made it thru another day...i felt like i was glued to a phone for most of the day organizing doctor visits..making sure EVERYONE was getting jons medical records so we dont show up and they say "well we dont have any of your medical records- you look fine" have a nice day type thing!!
the home health care social worker came in..she asked what we needed help in..so we did our best to explain to her what was happening..our main concern right now is a caregiver for jon..and we KNOW that social security will pay for it BUT because we had our huge tax return sitting in our bank account- they said we had too much money RGHGHHG --so much for trying to work hard and save our 10%!!! the social worker laughed and said its SOOO true- people who dont care about saving money or just spend money like its never going to end..then something like this happens..and then the government pays for everything..BUT for those who work hard and save their money instead of spend it out of control..they get the bad end of the deal...not really fair..but oh well..thats how it works i guess..
jon ran out of dilaudid so we had to get a new prescription from his primary care physician so i asked jon if he wanted a ride in the truck in his new seat? he said sure why not! sadly the seat doesnt lean back too much..so it took a bit to get use to it..it will get better with time..but we did make it to the clinic which was on Day street and back home..the seat is SOOO NICE!!!
then we got home and dinner was here waiting for us- thanks erin! love homemade bread!!! except for what it does to my waist line!??!?! it was the FIRST time in a LONGGG time i felt like a normal family..nobody was here but us..and jon ate 2 bowls of it ALL by himself!!! it was neat..then shortly thereafter elizabeth albrechtsen came over and helped to get the girls settled into bed..they were a bit rowdy tonite so i may have to work on that before she gets here next time!!
i have the new caregiver coming at 10pm..so in about an hour..hopefully she works well with us and then HOPEFULY and PLEASE PRAY that i can get thru the day with just me and jon and the girls..i hope i dont lose my mind trying to do pressure releases every 30 minutes while tending to the 4 girls..if it gets too much for me..ill have to just do something else..i SO dont want to burn myself out..so pray that it runs smoothly tomorrow for us..