Longggg day...

Today jon spent most of his day in the wheelchair again without his belt thing..thats so fantastic!! he worked at training sheldon and his brother scott on some aspects of the business..i think he enjoyed hanging out with them like the good ol' days..

sadly sarah and now becca are both sick..becca's fever was 100.7 and she fell asleep in my arms at 630pm..sarah is still sick..she has a pounding headache and slept a lot today..her fever was 102.7..we quickly gave them both motrim and sarah's fever dropped to 99.7..so thats good...she's pretty miserable..becca's happy as long as im holding her..so thats ANOTHER thing thats just been added to my plate..we'll see what happens in the morning if anyone else gets sick...jons REALLY nervous about getting sick too..hopefully its just a 12 hour thing or 24 hour thing and they are good in the morning..PLEASE PRAY that jon doesnt get sick..i dont think he has enough in him to keep him going...

Eunice is the new 24 hour caregiver now..holly trained her for the bowel program...and then katrina will be training her for the evening program thru the night..we have it set up now that jon will be in bed for the night by 10pm..then the caregiver will help jon at 12am and at 4am and at 8am..then he'll be bathed, dressed and fed for the day by 10am..and then hopefully ready to be up in his wheelchair by 10am or 11am...most days doing all that exhausts him! then the caregiver will go upstairs to rest for a few more hours and i will care for jon..then she'll be back down to help him..by 6pm we'll eat dinner..she'll help to guide him as he feeds himself..then he'll start the bowel program and get ready for the evening again..
Eunice will be able to be here till saturday night at 8pm..then i will need to contact someone (hopefully kim??-Kim call me!) and then katrina said she could come sunday night and then Eunice will be back monday nite at 8pm...SOOOOOO we'll see if this new set up will work for us...PLEASE pray that it does...PLEASEEEE pray that Eunice is capable and a fast learner and feels confident PLEASE PLEASE PLEASE!!!!

Well its now 11pm..i think its time for me to hit the sack...desert news called and they are also going to run a story on jon ..look for it next week sometime..i need to send them some photos- (nottinghams please email some shots of the fundraiser!-thanks!!)