Monday..

Today was a good day...jon slept well last nite...he didnt wake up burning like he usually does..im not sure if this is because i gave him his meds at 430am instead of 330 or 4am?? he seems to ALWAYS be FREEZING though!!! he did take his BP medicine..only he just took HALF of it..sadly its ONLY .5 to begin with!! oh well..poor jon is just not a drug taker of any sort!! i think tomorrow he'll go ahead and take the actual entire pill...it didnt do much for him anyway..he slept a lot of the day again..if im not right by his side talking or having him do something..he'll fall asleep..i really hope its because of his BP?? i dont know?? im VERY nervous about his presentation and all that that entails...he gets SO winded and tired out when he talks so much..and his thing is going to be 45 minutes long!! YIKES!! we're going to have to spend the nite in a hotel somewhere there in LA on sunday nite..the speech is monday the 18th at the marriott at LAX..its just too much to get jon totally ready AND get all the way out there with traffic by 730am..so we'll have to stay in a hotel..i think sandra is going to help watch my girls or my mom..i'll need to get that taken care of soon..
We did make it to PT today..jon came out saying "man i cant even do the simplest things anymore-its crazy!" ...poor guy..
my mom came out today to help for the day too..she swept my floor for the THIRD time today-its amazing how FAST it gets dirty with 4 kids!! she also started laundry going and hit albertsons for me..SO nice to have help like that!! it was her bday today too..all of her family (there are 10 siblings) kept calling her..i finally started answering the phone (Nancy's answering service)..it was funny..
For FHE we rented Highschool Musical and the girls loved it..during the singing, all of a sudden sarah started breakdancing on the floor! we were TOTALLY IMPRESSED! she could ACTUALLY do it!!
well its not even 11pm yet- which means im going to bed early - SO NICE! tomorrow morning im training ANOTHER caretaker for Jon..we'll see how it goes-- i hope she likes us and we like her and it works..i cant BELIEVE ive actually been doing all of this for over 3 weeks now..it will be nice to get some help with his care!