today jons blood pressure has been VERY low..we tested it before his OT appt here at home and it was 58/36!!! HELLO!! he's been SOOO tired..were not sure if its his UTI or what..i dropped off a prescription that would help to raise his pressure..so we'll see if that helps-- poor guy!!
i talked to our case manager who works with the insurance and she said that west coast spine is the ONLY one were contracted with - yada yada yada-- so ive contacted another place..rancho los amigos national rehabilitation center - it was in the top 10 for california for specialized SCI patients..im on hold with them right now..
we're going to try going to our primary care physician to get a referral to this place then see if the insurance covers it or if its out of our pocket..right now i feel like i'll do ALL his care and use that money to get him into this rehab place..
ill keep everyone posted..
1 year ago
4 comments:
This is peaceandlove from MC. I read your updates every day and want to let you know that you and Jon are in my prayers. Here is a big cyber (((hug))).
Have you thought of posting on craigslist.org...it's a free classified ad site on the internet... for the position you are looking for?
I hope his blood pressure goes up. That must be so scary for you. And hopefully you can go through a different physician after your last experience. I wanted to say too that I use to always get UTIs but now I take cranberry pills (it's cranberry in powder form) and that has really prevented them. You may want to look into that for Jon. He may not be thrilled about taking another pill but if it prevented the UTIs it may be worth it. Or even drinking cranberry juice. Also if he is in pain with the UTI see if he can take Uristat. It's specially formulated for bladder pain and it's a blessing when you are hurting like that. I hope he feels better soon and that you can find help.
The Pills DO work!!!!The Cranberry ones-I take 1 or 2 a day......Since my kidney infection.....it's warded them off!! take care-XOXO
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