wednesday..

made it to wednesday..i got the girls down by 830pm..then i got jon into his bed in the livingroom where we watched some tv for bit..i cath'd jon at 8pm, again at 1030pm again at 12midnite to cath and rotate, and i set my alarm an hour early for 3am to cath him..if he doesnt get cath'd he IMMEDIATLEY start sweating like CRAZYYYYY-he is SOAKING wet- like nothing ive seen before!! i usually didnt cath him till 4am..so i thought maybe i'll catch it early so he doesnt sweat so bad..but at 3am..he was pretty sweaty- this is that autonomic dysreflexia that leads to a stroke and death..so this is a reason i cant just always leave home and go out and about and do things..anyhow- i got him all cleaned up from that and went back to sleep..
this am we got things going again..i was SUPPOSE to have somebody here to help me..she was "dropping her daughter off at college"..but never showed up-- seh says she really wants this job..but im not sure its going to work if she cant even make it here or call..so again i did the routine..we finished by 12pm and were ready for the day, got everything in right on schedule..
robert is here and is helping jon, i ran with anna to sams club to get the basics like milk, bread, cheese yogurt- those types of things..it felt ALMOST normal to be doing that..its been 4months since ive seen the inside of most any stores! im back now and robert is on his way for our usual wed's lunch from carls jr..
im so sad..my sister kristi in eagle mountain- her family is kinda sick..some people have coughs and fevers..and kristi isnt feeling too good..i talked to my LONG time friend melinda taylor in utah to see if she could take my girls for a couple of days..im SOOO grateful to have friends that are able to help with things like this- THANKS MELINDA!!!
robert wants to escape with jon..so he's asked me to teach him to transfer jon back and forth out of the truck..they make me laugh - i think they want to go to fry's electronics like the good ol' days!!
well back to business