Thursday, June 01, 2006

really good day today...

today was a really good day for jon...he stayed at a 6 the whole day...he was in his wheelchair from 1130am on..so thats great!!! Scott came and they got a LOT done for his magazine -which jon is SOOOO THANKFUL that his dad and scott have come out to get that going!!! THANK YOU GUYS!!!!!!!!!!!!!!! if you know jon, you know he HATES sitting still!!! he's the most productive guy EVER...so this is soooo good that he's getting back to things again...
the OT girl came today- im going to have to bug someone to figure out where our PT is..you really do have to stay on top of things!! she gave him a bunch of weight things to have him exercise with..she was trying to give him all this information about a group called "possiblities"..they play sports together and stuff..jon was kind of like..okay thats really great- but im TRYING TO WORK on my business here!! thats WAY more important then me playing a sport right now..anyway - makes me chuckle how he's so nice to them..but i know he's really thinking something else in his head!
im just so thankful that jon had a good day today- i worry for tomorrow..it seems he has ONE GOOD day then it all goes down hill!! ughgh..so we'll see what happens tomorrow...but you can all sleep knowing today was SUCH a good day!!

I did end up going to the shower tonite with rachel and sarah..it was nice..on the way home i thought about when i was having my bridal shower..and i thought about how young we were, full of life and energy and open to all the possibilities that were going to come our way...i NEVER would have thought that it would include something like this...at our age of only 33 and 31 ..we feel like we.re living like 80 year olds! sorry if that offened anyone thats 80!!??? our lives are so drastic, we've gone from being so spontaneous to almost prisoned at home..jon cant really go anywhere..and im pretty much here as well taking care of him..i cant go too far for too long..he's popping 30 pills A DAY and that is NO LIE...i could go on and on about how our lives arent the same...i guess what i want to say is that everyone out there appreciate how good their lives are..if something isnt right in your life..change it...if you could be doing something better in your life..do something better..

tonite jon asked me "so whats going on in your life"..he kept falling asleep as i was trying to tell him...im not sure if i was just boring him or if he was truly falling asleep! i think i was boring him though!! This is whats on my plate right now, im working on finding 4 white dresses for these 2 weddings coming up, a black one for myself, getting jons suit altered, finding someone who will be able to stay with my kids at the temple for each wedding, remembering to go get the mail..its been 5 days now - OOPS i forgot AGAIN!, making sure the "house projects" are getting done-the upstairs bathrooms, the downstairs flooring, etc, making sure jon has continuous meds-which means running back and forth to wallgreens..they know me by name now, making sure i stay in shape so i can keep transfering him..im doing the transfers all by myself, and LITERALLY all by myself, i dont use any contraption or machine..its a certain technique i was taught at the rehab center, i can literally lift jons body and get him from a bed to a chair and back again..anyway- just the usual "making a house a home" and all that that entails to keep harmony in our home..only now there are 100 extra things to do..i think i'd scare him if he really knew everything i was doing!!!

well i need to get done here so i can go to bed..im waking up EARLIER to go running - which is amazing in itself -im NOT a morning person! but i recognize my need to run, on MANY levels..most importantly for my sanity, to help christina still be "christina", to stay in shape to help jon, etc..oh and of course the best reason is so robert will pay me the money for losing the most weight in the hales weight loss contest!!!! hahahh

Thank you everyone for your help, in SOOO many ways..for all of your prayers most imporantly, because your prayers are thee most intimate private thing you can do for us..and we thank you..also for your service, i have food coming in each nite, i have childcare in the mornings from 9-12pm, i have childcare/bathtime at nite from 730-9pm each nite, i have sisters that come tuesday, thursday and saturday to take my laundry and bring it back clean and folded, i have sisters that come every wednesday to clean my house for 2 hours, i have men come in every other day to do range of motion with jon, we have a couple that comes every sunday morning to help me get my girls and jon ready for church, i have the bishop and r/s pres that help me get food at the bishops storehouse..were so grateful!

We also want to thank ALLLLLLLLLLLLL of those that have donated to the fund...as of now we have raised 55K -- AMAZING!!!!!!!!! THANK YOU THANK YOU THANK YOU!!! That money will help us to take care of SO MANY things..its just wonderful!

1 comment:

Anonymous said...

good for you! It sounds like you had a great day, I bet you appreciate those days so much! You are so smart to run- take care of yourself, so you can do all those 100 of other things on your plate, wow, you are busy! take care, and I hope today is good too!
lauralee