jon had a good nite last nite..he's feeling good this morning..we decided to change his bowel program to in the morning vs at nite..i hope this eases things up around the house here in the evenings!! it will hopefully allow me to work on getting the girls to bed each nite..we'll have to see how crazy it gets at nite..
he's eating breakfast then we'll start the program about 930am..we should be done by 1030 then he'll start his bed bath and ill get him into his chair for the day..
i believe he has a PT appt today and an OT appt today as well...
im going to head down to OC tonite for Jennifer's bridal shower and take rachel and sarah with me if they'd like to go..Scott is on his way here to help jon put the magazine together...YAAA to dad for helping jon FINISH up the article!!! then ill have scott help to transfer him back into bed for the nite, and since the bowel program will be done, this allows me time to go to things in the evening such as this shower tonite..
THANK you so much for your prayers and being SOOO PATIENT with us thru this trial!!! when we have good days- i REALLY appreciate the GOOD DAYS!! having such bad days helps you to REALLY enjoy the good ones!!!
1 year ago
1 comment:
You may want to check out the Abilities Expo coming to SoCal in June. They have some great lectures and lots of vendors displaying cool stuff. Here is the link http://soc.abilitiesexpo.com/iaesoc/v42/conference/special.cvn
You can print a free pass at their website.
Keep the faith. Our prayers are with you, Jon and family. Dr. Steve L
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