its one of those days for me where nothing is working out..besides the wheelchair issue..im now trying to figure out jons care..this is just SOOO expensive and we havent seen or heard of ANYTHING regarding this issue...we let go the "weekend" person..she was SO overbearing and swore all the time, it was just not good...so the agency is looking for another weekend person...
essentially here are the hours jon needs serious medical procedures and care..
12am-12:30am : cathing, rotate
4am-4:30am : cathing, rotate, meds
8am-12pm : cathing, rotate, breakfast, meds, bowel program
8pm-10pm : bath/shower, back into bed, cathing, meds, prepare for bed
(not to mention all the care that I already do during the day by myself)
Right now, my caregivers are only doing the 12am-1230am thing, the 4am-430am thing, then im up at 8-9am cathing and feeding breakfast, then they come down around 10am to start his bowel program and finally finish at 12pm, then they go sleep from 12pm -4 or 5pm, while im doing his 4pm cath and making all my girls stay quiet all day, then they dont do anything with him until he gets back in bed around 8pm! im doing everything else!! they never give him a bed bath or shower unless i MAKE them do it..it's just frustrating!! i have a hard time paying them 30 dollars an hour for the ACTUAL hours they are working--which is ONLY 4 hours!!!!!!! im doing everything else...anyway - can you tell im bugged!!???
SO essentially i need to figure something else out..if i paid someone 15 bucks for their "4 hour minimum" that means i'd have to pay someone for the 8am-12pm shift AND the 8pm-12am shift so thats $120 right there already..which is frustrating since they REALLY ONLY work a total of 3 out of the 8 hours..
so if anyone understands my dilema and how they can help PLEASE HELP!! i cant do this all alone, this over time will harm our relationship, marriage, family life, etc..this isnt something i want to tackle on my own and hope for the best..i know my limits and my strength and ive already had a "burnt out" from 2 days straight of jons care..so if anyone has any ideas..please post them or email me..im desperate!
1 year ago
5 comments:
I think you need to place an ad on your own so you can set the terms and not the agency.
What ever happend with the Cathie lady?
Is there another agency that does not go by those terms?
Do you live by a college? I wonder if a nursing student could come and help for a fraction of the cost. It's an idea. And it would also give him or her practical experience. I would maybe check with the local colleges.
Do you need money? Is that why you have the financial information at the top of your blog?
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