Wednesday, June 07, 2006

productive day for jon!

jon got a lot more done with his dad..they started about 3pm and worked clear till 830pm!!! jon said he felt SOOO good about that!!!! he's now in bed and resting for the nite..we're switching the schedule around AGAIN...so now the caretaker will get up at midnite and at 4am and then i'll do the 8am one and she'll sleep till 9am..then she'll feed him breakfast and we'll start the bowel program..we're going to be working on getting her to transfer..we'll see how she does..that would make a world of difference if she can!! then she'll do any laundry of jons (usually his clothes and his PILES of bedding) and she'll sleep from 12-4pm..and be back down for his 4pm cath and meds..so we'll see how this works...

jon is doing GREAT though!!! i picked up jons prescriptions..80 more bucks for his neurontin - OUCH..but if its working - i'll pay it!! he's got the new methadone to try so we'll start tomorrow and see how it goes..again - more prayers that this methadone might be something that helps him!! also keep praying for more movement!!! oh and MORE prayers for LESS passing out!!!!! in tonites prayer, rachel asked that "dad not pass out so much"..how sad!! but SOO true...

me, kristen and erin went running...usually im BARELY getting to the mile marker..but tonite i went 1.6 WITHOUT stopping!! and kristen went 1.4!!!! SO PROUD!!! we're going to work ourselves up to 2 miles..erin taught me a good breathing technique..and it TOTALLy worked! im SO jazzed!!

well time for me to go hit the sack -- i was also able to get the girls to bed on my own..im back to a regular schedule..ive got them loading and unloading the dishwasher like we use to, and ive got them all bathed and jammies on by 8pm..then they get to play for 15-20 minutes..then story time, prayer, hugs and kisses then in beds by 830pm..just like ol' times..

i pray this new schedule works..and im SOOOOOOOOOOOOOO grateful for family being able to stay out here during the day's to make it possible..it wouldnt work without their help!!!

i just wanted to say im SOOO thankful for your prayers- and to see the fruits of your prayers mixed with jons faith and determination..its just miraculous!!! how awesome is that!!!??? i love it!!!

1 comment:

Anonymous said...

Sounds like you are doing an amazing job keeping everything on schedule for John and keeping basic, important routines in place for the girls. You are amazing!