autonomic dysreflexia...

today jon woke up in a good amount of pain...i cath'd him at 8am and got 300cc..then he "worked out" he showed me his legs..we THINK he may be moving his knees!!! we're keeping a VERY close eye on it- were not sure if its his hips moving or his upper body or what BUT there IS slight movement!!!

around 10am he was having signs of autonomic dysreflexia again --i thought OH NO not again!??!! his pressure was 147/100..his typical is 91/58...so i immediatley cath'd him gain and got another 300 out..then i checked his bowels..i worked with him and in tandem he did SOOO GOOD!! we got a good amount and the blood pressure dropped..im SOOO grateful that i am able to relieve that kind of pain and bring his blood pressure down..there is something so totally wonderful about doing these things for him...the other caregivers dont really work with jon the way i can and he's SOOO grateful when im there to really work with him!!!

he's now getting dressed for the day and will begin his VERY busy day today..he has a meeting at 12noon, then a friend is stopping by, then his PT and OT today..i have a company -THANKS RYAN MCCOOK -who is going to help spray for ants-- my pantry is a nitemare..i've got a big project to get that all cleared out..its out of control...like i REALLY needed ants on top of all this!! rhghghh

the equipment is coming this afternoon for jon to try out - it includes a commode chair, a hoyer lift, a trailer lift, a titaniam wheelchair, an electric wheelchair (that weighs 330lbs!) and some supplies!! its from a family in eagle mountain utah..were so grateful! wer'e going to test it all out and work out something with her to purchase it all..

i just wanted to take time to REALLY thank those that are helping - im sooooo grateful...i want SOOOO bad to have my family back and to do it all...but i know that it would ruin me to take this all on my own..and im so excited to take these baby steps to get my family functioning again and start living our lives as normal people again...im SOOOOO grateful people are understanding of our needs, and understanding of our time line..and willing to do what it takes and be here for the long haul..were so blessed!! this truly is SOOO hard

i hope dede doesnt mind that i stole her comments from her blog and posted them here..
"I know everyone reads christina's blog... and i thought i understood a little bit of what was going on for her.. not really understood.. but pictured it i guess.... I WAS SO WRONG.. wow... the hales family is amazing.... that is all i could say.. i was speechless.. i don't even know them that well (although i feel i do...cuz of amie and from knowing all jon's brothers)... I can't believe the trial that they are facing.. and and i was amazed by their strength and their faith... christina just is organized, patient, solid, happy, calm, loving, and so so STRONG.. and jon is so faithful, sweet, caring, patient, strong, and determined... i was literally blown away.. i held the tears in until i got in the car.. i drove home in silence.. no music, no phone, and just thought and prayed... WOW... is all i can say.... they are truly an amazing family.. i really don't know what to say about it all ... all i can say is.. i know Heavenly Father loves them.. and I know is watching over them, i know he will bless them beyond believe.. and he will carry them through this... i know that they are very special, and that he will only give us what we can handle... it reminds me of that question.. that EVERY person i met on my mission asked me......WHY DO BAD THINGS HAPPEN TO GOOD PEOPLE????? it was one of those questions that was so hard for me to answer.. cuz as they would ask.. i would see so many people suffering... and it is just a hard one for me to answer.. but all i can say is .. we are his children and he loves us... and HE knows best.....I thank the Hales for their strength and examples... and ask everyone to keep praying for them....."

please--keep praying!