longgggg day...but worth it!

Last nite went well...i tended to jon till 1230am..around 10pm he was having signs of dysreflexia AGAIN, sweating, clammy, HIGH blood pressure, so i cath'd him 2 hours early and that solved the problem.. then i cath'd him again at midnite and got more out..then i stayed downstairs on the couch incase he woke up with signs of dysreflexia again..he was scared the nurse wouldnt hear him on the baby monitor (we werent sure it was all hooked up right)..then the nurse was suppose to come down at 4am but came down at 440am..RGHGHG so then she went into jons room and i headed upstairs to my bed..then woke at 730am to get us all ready for the day --so once again im EXHAUSTED!! and its only 3pm!!!
jon said he did fine thru the nite..so thats good..we got us all up and out the door..our appt was at 840am..the nurse was taking jon out the front door and not listening or watching jon and he ended up passing out hard core..i was getting the truck ready and looked over to see him COMPLETELY passed out- i was SO mad she wasnt paying attention!!! i said oh no he's gone tilt him back!!! anyway - after i threw the tipper bars off because the nurse wasnt doing anything right...we got his head back and feet up ...it was pretty bad..his eyes were blood shot red, tears were forming and yet he was just not there..he finally came to..i had to be REAL careful because ALL of the girls were right there- i had to make sure i wasnt freaking out - even though i was freaking out inside quietly!! SO SCARY!!!
we then got him in the truck and away we left AT 840am..we got to county hospital..i asked where to go..they said you go see dr. so and so at this place..so we went to the place and they said pull a #..i said but we have an appt..she said so does eveyrone in here..there were 50 people!! so i pulled a #..i was 32..we were on 20..great - more waiting!! so we waited an hour till our number was called[Certification] and then we got registered..then we had to go see someone else to make sure we had authorization to even be there, then we came back and waited again till they called our name..that process took 1.5 hours! we then got called back..got vitals checked..his temp was good..but his blood pressure was 70/50! YIKES! we then got put in a room and waited AGAIN for the doctor only for someone to come tell us "uh well, your in the wrong clinic and the wrong doctor - were not sure why you are here?" AHHHHHHHHHH...i said i called 4 weeks ago to get this appt..i said we needed to see dr. jackson who did his surgery for a follow up ..she said in 4 weeks she had an 840am appt..so here we are..anyway- everyone at the desk was mad because everyone was blaming eachother..i told them it wasnt ANY of their fault - it was the girl who made the appt 4 weeks ago - blame here already!! so then they called down the spine section..she came down, sorted it all out..she told us jackson's not even in till fridays..i told her our appt was 840! its now 1130! so she had us go take an xray and then another spine doc would compare the 2 and she'd put a call into jackson..so away we went for xrays- waited another 40 minutes and then got those done..it was funny because the tech girl remembered us! she said i did your xrays when you FIRST came after your accident..then i saw you in the newspaper! and now im doing it again! how cool is that!! it was funny...then we went upstairs and the one spine doc saw us and was AMAZED at what jon could do! he was SO excited! he said you shouldnt be doing ANY of this!!! then him and the girl said they'd set up an appt with jackson so he could refer us to outpatient rehab..while waiting we were infront of the nurses station where jon stayed for 4 days- they said "hey you - the guy that was in the newspaper- jon hales!?!?!" we said - hey you remember us?!?! they said OF COURSE!!!!!!!!! so we rolled over there and talked to them ALL - it was SO FUN!! they were all bawling because they were SO excited about his progress and the impression that he left on all of them..then they paged dr. jackson and he called and said he was coming tomorrow to do surgeries ..so he'd go over our entire chart and view everything then just call us at home! WAY NICE! dont have to drive out again!! its SUCH an ordeal!!! when the girl told him everything he was doing - dr. jackson was SOOO excited!! he couldnt wait to view the file!!! this is the dr. that was SOOO negative and said he'd never move again and i'd better start preparing myself for that..it was the FIRST time someone told me 'your husband will never move again" i will NEVER forget that day, what i was wearing, who was there, the words he spoke..never forget..so to hear how excited he was about his progress..that was awesome!! we then told the staff that jon could move his finger and toe..they said oh ya its probably spasm..so we took jons shoe off and pulled down his sock and he FLOORED them all that - NOPE jon MOVES his toe - its not a spasm!!! it was SOO fun!!
we then got home about 130pm - SO LONG!!! but robert was here with our usual carls jr. wed. lunch - and now they are working on his magazine..erin has my girls at chuckie cheese, becca's taking a nap, and the tile guys are working on my bathroom..i have to run back to walgreens to pick up MORE medicine for jon..he's going to be taking something for his bowels to work better, and methodone for his pain..just a SMALL amount..to see how it goes..then next week we'll up and see how it goes..so poor guy - MORE pills!!!
even though today was long - what a FUN day to visit with everyone again!!! it boosted our spirits as well as theres...i forgot to mention that they had posted the newspaper article on their desk so everyone could see and remember jon - it was WAY fun --everyone at the hospital kept saying- your that guy from the newspaper- it was such a crack up!!

well i think im going to lay down for 10 minutes..even though i have a guzillion more things to do!!! thanks for your prayers- PLEASE keep praying for more movement and that this methodone will work well with his body and MOST importantly right now that this new medication for jons bowels will work too!! its SOOO important for that to work smoothly!! the things we take for granted!!!