Wednesday...

Ive been SO CRAZY busy i forgot to get a quick update in...Jon is still VERY lupy, tired and nauseated being on that baclofen..he did great this am getting himself dressed (putting shirt on), brushing teeth, washing face..so that was cool..for one of the PT sessions that i was there for they did another evaluation for his wheelchair which is going to be around 35k..im AMAZED that its the price of a car!!
He had his conference today with the team..they did not extend his may 10th release date..its still the same..he is improving in all areas though..they say the main thing is managing the pain..its really hard to target it and get it settled..
IF he's okay on friday- the 2 PT guys will take him down to carls jr to see how he does out in the environment..so we'll see how he's feeling..if its ANYTHING like today..he wont be going at all..i feel so bad for him...he just talks to you with his eyes closed..he's THAT tired and luppy! it's bad enough that he's stuck in a wheelchair- so to be feeling that yucky just adds to it all...
he also still seems to have a UTI (urinary tract infection)..we feel like its all the nurses it seems! each one does the cathing so drastically different from the next! its not wonder!!! thankfully one person showed me it the RIGHT way from the beginning so i know how to do it..it drives jon CRAZY that the nurses even after being there 35 years cant seem to get it right!!! can you tell that me and jon are a little bugged about things!!??
i THINK we may have things settled out here at home so when he gets here it will be okay..he'll stay down in the office area in the hospital bed..and then use a special chair to get around in at the downstairs bathroom until the upstairs bathroom gets completed...once that is done and the lift..we can get him upstairs..
i also need to figure out caretakers for jon..i need to write down his schedule and find someone that's going to be able to do those things for him during those times..the insurance pays for it..but you always need to double check so you aren't surprised!! i think once i narrow down and get the caretaker thing figured out i wont be so nervous about having him home..once he's home its going to be SUCH a HUGE change for all of us..i just PRAY i have the patience for my kids and for jon...

sometimes i just start crying when i start thinking of everything i have to do now to get things ready, how much everything is going to cost, everything i will need to do once jon gets here, my children's lives, our business, 2 marriages in for the Hales family in June to prepare for...everything..its overwhelming...but ive realized that if im organized and take it one step at a time and just "do what i have to do"..its easier to go through..and the BIGGEST help is learning to just rely on Heavenly Father and Jesus Christ..that it will all work out..and keep the faith..
im so thankful i have ALLLLL of you to help lighten my load..thank you for all that you've done, do and will continue to do in the future..it truly does make a difference and were so very grateful!