Sunday, April 30, 2006

Struggling...

Jon is struggling right now..he's at a solid 9...its very difficult..he says its the worst he's ever been...they want to give him Perocet..but he's hoping his Norco and sleeping pills will do the trick..
its so frustrating..it really does seem like the doses they give him work for 3 or 4 days then his pain level goes higher..so the medication dose or strength goes higher- then that works for 3-4 days..then same thing his pain level goes higher again..and up goes the pain meds..we just dont understand it...
besides all of his pain..robert says he had a great day..he actually "kicked off" which means his bladder may be coming back to function..that means essentially his bladder released a good amount of urine without a cathadure..which is FANTASTIC! he also ate ALL of his breakfast ALL of his lunch and ALL of his dinner! Russell Santos and i think Chad Thompson brought the sacrament to him..and Jon picked out his OWN piece of bread!!!!!!!!!!!! unbelievable!!! it was a very moving experience i hear..
im so sad that his day was sooo good only to hear him struggling with his pain..it was so hard to be on the phone and his nurse try to help and then to hear her say.."jon what can i do for you to help you?" she was so sincere too..i knew she really wanted to help him somehow..he just told her..its okay..im just in a lot of pain and there really isnt nothing you can help me with to make it better..ill just lay here and wait to see what happens..
we said our prayers together..then he said he was hoping the sleeping pills would kick in..he could tell that his brain was SO tired but his body was in too much pain and so it wouldnt let him go to sleep..i told him i'd just stay on the phone till it hung up on me..his phone is voice automatic..so unless he responds in 10 seconds after it peeps..it will hang up..so i waited for the hang up..
i will call in 30 minutes to see if he got to sleep..i will call and ask the nurses..i absolutely hate this...i just dont understand whats going on with his body..why it keeps getting worse pain wise..things like this make me SO NERVOUS thinking about having him home! if we dont have is pain managed before he gets home i just dont know what will happen?? how can i even go to bed like this..knowing hes just over there by himself suffering..
just pray for him..i imagine most of you probably wont get to read this till in the morning..i hope by then i have better news..we'll get through this..

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