A Quiet Sunday...

Today i got in to see Jon about 12noon..he was working on getting into his wheelchair for the day to go to his one and only PT session for the day...he said he'd been having difficulty waking up all day! it took quite a while to get him in..he was wheeled down to the Gym where he had to pick up blocks using his wrist motion and put them into a container..you can see with the pics..he has better control in his left hand then he does his right..in one picture where he is smiling thats because he looked up at the PT guy knowing that he had "cheated"! Jon had used his other hand to help his other hand pick up the block..it was a pretty funny moment!!
Jon was then wheeled back to his room..i gave him a pressure release..he ate some lunch and then decided to get back in bed..he was SO tired today..he's not sure if its because of the baclofin they are giving him..or if his body was just exhausted from the week's worth of work..once he got back in he slept solid for 3 hours..he woke up in an extreme amount of pain..they realized that he hadn't had his next dose of pain medication..i get so frustrated that the nurses cant even keep track of that!!!! if jon wasnt on top of his OWN medication- he'd never get any!! we feel bad for those that arent able to keep track! once he got that down..an hour later he felt much better..but his pain was encrouching on an 8.5...but it did get back down to 5..it never gets lower then 5 though..
I was able to feed him his dinner..which again was pretty gross..he was really craving del taco..but it was sunday..so he ate his hospital food...then Todd and Kristen Thompson came in..we had a fun visit with them...they left and about an hour later sandra came with all the girls..they girls were so excited to see dad!! anna i always notice likes to be right next to him..she's so cute! rachel was THRILLED to see her class poster was hanging on the wall..that made her happy..she asked if dad read the letters her classmates wrote to him..he said EVERY SINGLE ONE!! he liked hers the best though he said...he also liked one that a boy wrote which said "dear mr. hales, i want you to know that i do all my own stunts too"..it was HILARIOUS!!
then we all said good nite to daddy and went on home and got everyone to bed..tomorrow my mother is going to be with him for the day..hopefully he gets good rest and is prepared for mondays back to the grind work..
i wanted to mention how SURPRISED i was when i was having him close his eyes and guess where i was touching him on his right leg..he said every spot! then i took a plastic fork and poked sort of softly and he said EVERY spot!!!!!!!!! now THAT is AMAZING!!!!!!! he doesnt have quite as much feeling in his left leg..but i squeezed some areas and he guessed each one!! again THAT is amazing!!!! before he couldnt feel ANYTHING in EITHER leg..then he started to slowly feel in his right leg if you REALLY squeezed it..so the fact that he could feel this much more- its truly amazing!!!! he said he can also feel his abdomen now..and his bowels are functioning EVERY day - so THANK YOU SO MUCH for those specific prayers! it really did work!!!
continue to pray for upper body trunk control, tricep strength, and healing of his body...also i ask to pray for me...that i will be able to organize the countless things i need to get done..i function SO much better when things are more organized..pray that i will get my house physically back in order...i have furniture in all the wrong rooms and i need to put my little temple back together..and that i will be able to be organized to continue to get things done to prepare for jons arrival back into his own home...pray for my girls..especially rachel..that she wont get her feelings hurt at school due to jons situation..i pray that the kids at school will be nice to her..and supportive of her at this time in her life..pray that they will be positive towards her..and that their hearts will soften and they will put their little arms around her and embrace her...she's struggling a little..and needs to find her spot in this chaos..im doing my best to make life normal like it was before by having school, prayer, scripture reading, family home evening, dinner at 6 every night at the table..all those things..
thank you also to EVERYONE that is involved with this silent auction & bbq fundraiser! it's turning into something wonderful!! and wonderful for everyone involved! it will be so neat to be around so many positive and caring people...thank you for ALL of your efforts!! we are truly being blessed!!!