Thursday, April 27, 2006

Ended on a good note..

Today was good for me..my dad ripped out my bathroom! He's the man!!! Then Tracy came over so I could head over with my dad to the tile place to pick out which was best to put in there...it took me a while..but i think i've found something that will work...we then parted ways and i headed up to see Jon since i was already stuck in traffic anyway..i called Sunny Eggleston and she came to release Tracy so she could go to her Leadership meeting..Thanks you guys!
Jon was in good spirits when I go to him...shortly there after the doctor came in and talked to jon, myself and sandra...we discussed that he feels like he might be getting acclimated to the baclofen..and that although his pain stays at a 7 most the time..there have been a few times its spiked up to an 8..they did a whats called a "tens unit" on jon..its a patch that sends electricty to his muscles..he said it didnt do much..but the doctor said he wanted to train me on it because that way i could send it to be more pulses or less pulses to find which one might work for jon..they are very expensive..but ive heard that people can rent them first to see if it even makes a difference before you purchase one..i feel like were purchasing ENOUGH HIGHLY priced things..if this doesnt work no need to spend more money!!!
Sandra soon left after that and I helped him with his "bowel program" which essentially means going potty..which he says use to take him less then 2 minutes now takes 2 hours...there's a lot involved..then we got him back in bed..i changed his day clothes to night clothes..and then the nurses took over from there..
im so very grateful i got to go see him today..i miss him so much...it was great to see him in better spirits and not so out of it..he talked WAY more then he has the past 3 days combined..im hoping the baclofen is working with his body..
please pray that his body acclimates to the baclofen..so that he's more himself..PLEASE pray for him especially tomorrow..they are taking him to carls jr!! its his FIRST time out in the outside environment...so please pray that all will go well..that his spirits will be good and his strength to do so...i think this may be the first time he will see what its really like to be in a wheelchair in the real world type thing..i imagine he'll have SO MANY emotions..so pray for his strength in all ways...also pray that he will be able to come on saturday- he REALLLLLLY wants to come..so pray that that will happen for him..that his body will allow that..he really wants to see whats been happening "behind the scenes" he says..he keeps hearing about different things regarding this fundraiser and he wants to witness for himself the magnitude of the affect he's having on so many many many lives..i imagine he'll be SO emotional! but i'll be standing right next to him with the wet washcloth that he'll need to wipe his eyes-- because they burn when he tears up..so please pray for these specific things...
tomorrow they are going to train sheldon and myself to transfer Jon..it will be up to the both of us to get him into the car and out of the car on saturday! NERVOUS!!! i hope we dont drop him or hurt him in anyway!! im sure we'll be okay though..but its still nerve racking!! please pray for the both of us that our minds will be clear as the train us ..that it will make sense and that we'll (more me the sheldon) will utilize the RIGHT muscles so that we (again mainly me) will not injury ourselves..
THANK you to everyone for the help..its so wonderful to be around so much positive!!

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