Wednesday, April 19, 2006

he's the wheelchair man!

Today for his last PT session..Big Bill took him outside to the dreaded cement steep! he had to, all by himself, push himself up this sidewalk that increasingly gets higher as you..and Bill did not help in ANYWAY..even when jon was rolling backwards because it was getting a bit steep for him..but jon made it!! jon really feels like he's getting stronger about things..he's so happy about that..that he's improving he feels..
he said renetta (larkin) carlson was there and was SO KIND to him..he was so grateful for her help while she was there..thanks renetta! he told me rebecca larkin came..i said its renetta and i HOPE you didnt call her rebecca!!! SOOO sorry if he did renetta- he's REALLLLY bad at names!! im constantly reminding him my name..no im just teasing..but he really is bad at names!
he said also he ate all his dinner..and that it isnt so bad to eat..that he does not have nausea like he did before..and he's not totally force feeding himself like he was before..
i caught him up on what i was doing regarding the business..jon never likes to be out of the loop on things..he felt so relieved when i told him all that was happening with it..hopefully things will come together regarding the business and jon can provide for the family like he intended to do when he started the business..i was thinking a couple of hours ago..jons biggest talent is his art..and i got sad..because i thought..he cant draw right now..thats what fed our family was his talent in drawing..but then i realized..thats what STARTED his career..he's so talented..his people skills, worth ethic, leadership skills, attention to detail, all of those things he is so good at..our hope is the business will help us to be self sufficient!
i FINALLY charged the batteries on our nice digital camera, so i will take that in with me and get some shots of him..he said to be sure they were "action-cool shots" not lame sitting around in a bed shot!! that is SO jon!! i reminded him to just make sure his hair looks nice!!
we then ended our conversation with prayer over the phone..the sleeping pills were starting to take effect..im so grateful we end our day with prayer..thats so important ESPECIALLY now to keep that going..it helps each on of us know what is on the other persons mind..we've always taken turns..he has all the even days..i have all the odd days..that was before i realized most months end in 31 and then start again with 1!!! he laughs everytime its the 31st!!
continue to pray for him..he REALLY is getting stronger! continue especially for his upper body trunk control..his bowels for the past 4 nights have WORKED!! this for sure is a longggg process...but with specific prayers..you can see each one working!!
tomorrow my mother will be with him..and i will visit with him in the afternoon..im so grateful i have people that are able to sit with him..he really does enjoy their company..and feeling like he can sleep even if they are sitting there..
the team suggested an option for jon would be to go to one of these "TLC"..transitional living centers...if anyone has any information on that please email me..i did a little bit of online research..that would be helpful!

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