Thursday, March 30, 2006

had a good day..

jon had a good day yesterday..it seems all a blur to me now though! oh ya..i didnt get there till 1130..thats why im not remembering a whole lot...we did manage to have our business meeting with sheldon and scott..we got alot of things addressed and assigned out to be taken care of..
he did some more hard PT..then some speech therapy..then i think that was it for the day..i stayed the night with him..he took 2 sleeping pills and 2 tylenol again at 10pm and was out by 1030 till about 4am..during the night they rotate him and he never wakes up..i slept on the floor next to him on a camping cot- quite comfy vs the hardwood floor!! jon slept solid thru but i'd sort of wake up each time they came in..at 4am his arms were SO stiff and sore..so i got up and stretched and massaged them a bit...then he went back to sleep till 630 again..
he ate ALL of his breakfast which is SO nice! i dont have to worry about that so much - he's eating TWICE as much as he was before - which im so grateful- i was so worried!!!
they had their "wednesday" conference that they will continue to do each wednesday..they said he's doing good..and the projected date of discharge is april 19th -- which was SHOCKING to us!! we felt like that was SUPER SHORT!!!??!?! they said "because of your insurance"..but we know that we can bug them to extend it and they can tell the insurance company that his medically neccessary for an extension..but we were still surprised that he's only in there for 20 days...then hell have outpatient therapy..but it wont be as good as inpatient therapy..inpatient is MUCh more frequent..so we'll see how this next week goes..
they've been starting his therapy at 715am..which is terrible because thats RIGHT when breakfast is getting there!! and he doesnt want to spend his PT or OT time getting dressed and eating breakfast!!! so they made some changes and now his therapies wont start till 845 after EVERYTHING else for him is done - which is nice-- it just means he'll end later during the day..
were just a little concerned because his spine is still in "spinal shock" and still has swelling..so were not even sure if all this PT is working right or even beneficial because of those two things..thats jons greatest concern right now..he continues to get more feeling each day..more so on his right side then on his left..
we REALLY are asking for prayers that his spinal shock and swelling will come down rapidly..so that his PT stuff with be more beneficial to him..he also asked that thats what we fast for on sunday..its his greatest concern right now..not being able to do as much because of the spinal shock and swelling...
so far very clear of pnemonia..his breathing is fantastic..and he's eating so much better...he's still having difficulty getting acclimated to a chair that is at a 90 degree angle..ALTHOUGH he's definalty getting better at being in a chair..its tiled down a little..but hey thats better then no chair! so keep praying that he'll gradually increase his angle to feel relaxed at a 90 degree angle..when i left this am he was SO exhausted from being at that angle!!!! he couldnt believe how much focus and sheer energy it took JUST TO SIT!!!! its so amazing to see JUST HOW MUCH energy it takes to do ANYTHING!!! that is SO frustrating for me- to watch that...
he did get going on his wheel chair - as you can see by the pics..they had him outside almost uphill a little and he had to turn around - it took EVERYTHING out of him -- it was so sad to see him work so hard..and see that it wasnt much..but one day at a time..
so please pray for his spinal shock and swelling to go down rapidly, for his deltoids and ESPECIALLY his tricep muscles!!! that would make his life SO MUCH easier right now!!! and continue for the pnemonia and especially no bladder infections...
he still has his postive determined attitude..jon and i talked last night together..and where our focus needed to be..that he was promised in his blessing a full recovery..and that we will need to have continued faith in the priesthood and those blessings and that a full recovery IS going to happen...so that is where our focus is and we hope all of yours as well..when that happens..we will ALL have truly been blessed to be part of a REAL MIRACLE..how fortunate we are in this day and age to STILL witness the very real existence of a HF and Jesus Christ...our testimonies will be incredibly strengthened...we will now for sure they are real and live today and do very much care for us..with this added strength of testimony..the future will be so much more encouraging to all of us..
thank you for joining jon and i on this journey that we are honored to share with all of you...

1 comment:

DeDe said...

thank you christina for inspiring us all.. we love you... we all are ALL still praying all day for you and your family... we will pray and fast for those specific things... thanks for your examples...