good day for jon

jon had a pretty good day today- it was a lot of evaluation stuff for him..he is set up to do PT 6 times a week..2 times monday thru friday..they say every wednesday is their "update" day ..and thats when they will update jon on his progress and make the next week's goals..
they had him up in a wheel chair for about 1.5 hours..he gets REALLY lightheaded and a bit woosie from sitting up like that..so we have to have him lean back a bit for 5 minutes..hopefully he will get acclimated with the chair..thats the hardest thing they say - once that happens..it gets better...
so far i like the PT's ive met-they seem really nice and upbeat..
he had a cognitive therapist type person come in..and ask him question about his memory and congnitive stuff..i had to laugh because one of the questions was who is the president of the US - he said George Bush..then she asked who is the VP? he said OH MAN im SOOOO bad with names!!!!!!!!! and if anyone knows jon -- they KNOW he's SO BAD with names!!! he said.."oh man.. now im TOTALLY nervous!! am i going to bomb this??? i dont keep up with celebrities or politicians!!!" after a minute or two he remembered..but i had to laugh because i know him SO well that way!! so he passed his cognitive test with flying colors..they will be helping him with his voice..jon feels that that could use some improvement..he was SUCH a great singer..i miss that! but to me it sounded like his normal voice..but it wont hurt..he said "it cant be as hard as PT! ill just be talking mostly right!?!?!"
he took a few naps here and there..then at 5pm all 4 girls came..that was SO FUN and SO NEAT!! his room has a little courtyard off of it..so they could go in and out the whole time..there is a table with chairs out there too..and its fenced in so they cant escape..they were just busy eating ALL of jons candy!!! someone gave us a HUGE thing of licorice..so jon had me set it out by the door and its now called the "visitors vine"..he wants his visitors to have one when they come in or leave..
rachel realized just how bad things were..she didnt realize that he couldnt move anything..so we explained why he was there and made things make more sense to her..she sure didnt seem too worried about anything..so that was comforting..it was SO great to see them -its wierd when you dont see your kids much then ALL of a sudden they are HUGE!!!!
then paul and kelly dobbert came in- those two are HILARIOUS! we love them so much!! they brought us some del taco - and again if anyone knows jon - he should have stock in del taco!! he LOVES their green bean and cheese burritos..so they brought massive amounts of del taco for us..jon was worried about acid reflux..he'd been having it the night before and a little thru the day..so he only had about 4 bites of it..but they brought him sprite ..which is funny..because whenever we all go out to eat for dinner..jon i think drinks 18 glasses of sprite!!! so paul bought the HUGEST cup of sprite ever!!! jon was in heaven!!! they also brought him some workout pants and tshirts...one tshirt was a gaming tshirt (ninetendo) the other was a shirt that said "i do all my own stunts" - we were ROLLING!!! it was SO fun having them there..it was just like old times..hanging with our friends again..it was nice to escape what was going on in our world right now...then they left a little before 9pm and jons brother todd came to stay thru the nite with them...
we seemed to ALWAYS get the nazi nurse!!! the head nurse told us that we are not allowed to have visitors stay all night..we explained to them our situation and our feelings about things..she said it was okay now since we are new..i told her..right now he cant do much of anything!! sure there is this big button he can push..but it takes you guys a LONG time to actually come in here!! sometimes his eyes just start burning for NO reason -- were here to put drops in them..what if he's choking on something - he cant even cough anything up!!! im not willing to risk that much..anyway - i was getting frustrated..jon said that we would talk to george our go to guy on monday when he comes back in for work..but as of now..family is staying..i think i may have to leave the 3 lawyers cards again from the hales brothers!!! that seems to always make things rolling!
when i left at 930 jon was heading off to sleep..he didnt take any anxiety medicine the night before..only a sleeping pill..and then tonite he didnt take either of those..so hopefully he just falls asleep on his own more naturally..
tomorrow all of the family will be here..chad and kelly drove down from up north...and so we will all just be hanging out with jon..chad will stay all night with him HOPEFULLY tomorrow nite..
we would like to specifically ask that you pray for jon to be able to be acclimated with his chair- this is a HUGE hurdle for him right now..he cant do much until he gets use to the chair and being sit up into it..so please pray for that..everything else seems to be doing well..he said that he can feel the toes been squeezed on the right side..the nurse had put an abdomen wrap on him and when she took it off..he was laying flat on the bed..and when she pulled it from underneath him..he said he could totally feel that..so we'll just have to be patient and wait to see how he progresses...once again it was hard to leave him..i just really want him HOME SO BAD!!! i want to be able to sleep next to him and not worry about some nurse trying to kick me out...i want him to be here to see the girls and his family..to just be in his own enviornment..he's so grateful to have me there with him so much..he knows its so terribly hard on me..i tell him i have so much help from our ward and from our families..im very lucky..but he knows deep inside its hard for me still..and yes it truly is hard deep inside..im good at making things seem fine..but i know its important to feel those feelings of "its hard"..but what we do with those "feelings" is whats most important..today jon and i had a good 10 minute cry together..i think it was good for the both of us..its funny how you ALWAYS seem to feel better after a good long cry!!
thank you to everyone praying for him..remember the specific one of the chair..the breathing thing has TOTALLY been taken care of!!! were SO grateful! and its because of ALL of you and the specific prayers..its SO wonderful to see progress and its SO wonderful to see our prayers working!!!! what a testiment!!! we tell eachother..science and medicine doesnt heal...faith and HF heal..physically and most importantly spiritually...after all..were not human beings having spiritual experiences..were spiritual beings having human experiences...