doing better...

today jon is doing better...i think using the liquid neosporin seems to be helping and ALLL the extra prayers!! he was able to make it to PW today with his parents..they left around 1230pm and got home around 7pm..after a stop at fry's..that is SO jon!! (it was screaming his name off the frwy!) you can see it right off the frwy as you drive down the frwy..

today robert said his quads were a little bit active! this is great news!! also candice his head PT girl said that while taking his shoes off she was surprised to feel that his feet were sweaty! i guess this is a big thing!! so rock on for stinky sweaty feet! we'll take those!!!

he is back in his bed...totally out..i have a long day tomorrow..taking sarah to her Gate Challenge competition (she is in the gate program at her school)..then that nite we are taking the older 2 to go see phantom of that fullerton civic light house..its a SURPRISE!! they will be so excited! they LOVE classics like that and fiddler on the roof, sound of music..SO NICE!

Jon not doing well...

today and yesterday jon has not been doing well..im thinking he has another UTI..yesterday was REALLY bad for him...thankfully we didnt have anywhere to go..his whole body is just burning CONSTANTLY..its really hard on him..his last comment before he went to sleep last nite was "its so hard to do this everyday-be in constant pain EVERYDAY-it starts to take a toll on me..sometimes i think it might have been easier on all of us had i not made it thru that afternoon" UGH-that is so painful to hear!
today is a LITTLE bit better..he kept passing out in his chair this am while amanda was taking care of him today..sandra got here and i put him in the chair too..but he kept losing it..we made it to the truck..but it was too umbearable for him..so we decided to just keep him home..he's been nauseated too both days..THANKFULLY neither myself nor jon have thrown up anything-i feel great (knock on wood!)

as far as the UTI..were concerned about doing more antibiotics because it just builds against his immune system..we continue to "flush" his bladder out with liquid neosporin..that does the most so far..for the most part he is just SO miserable and SO wiped out..he's sleeping now..

this morning he said he woke up and couldnt walk! (he was teasing) he said.."this is rough..i cant imagine living the rest of my life like this..this really is no way to live..to be so confined to my bed like this and in constant immense pain.."

needless to say he's having a hard time..hopefully in the next few days he'll be back to getting out and about..

we've been bombed..

well anna's doing better- she's been able to keep 2 pieces of toast down so far and some 7up so thats good news!! the girls were gone ALL day for a bday party..nice! they got home around 430pm..i started dinner at 5pm and helping sarah with a school project thats' due next tuesday..then at around 6pm becca started throwing up..her FIRST time EVER! and then within MINUTES the other older 2 girls did..lovely. So now ive got all 4 of them throwing up-well basically 3..its been a lovely couple of hours..and they've all thrown up like 5 times since 6! the older 2 are self sufficient which helps..becca is the WORST!

im just counting on me getting it..i have no idea what we'll do with jon..

well time to go watch tv..i figure im going to just have to stay up all nite! i wish i was into scrapbooking- i could do an all niter! i'll have to think of something productive to do!!!

Jons new schedule..

starting this week..jons schedule has changed to:

Mondays: LA 1230-3pm (Roberts helping)
Tuesdays: PW 12-2pm (Roberts helping)
Wednesdays:DAY OFF!
Thursdays: LA 1230-3pm (Sandra helping)
Fridays: PW 2-4pm (Hales helping)

on mon/tues i go with my dad incase jon needs a cath or anything while my mom stays with the children and has dinners ready for me on those days- SOOO WONDERFUL!!! we are typically gone from 11-330pm on mondays and 11-5pm on tuesdays..

thursdays sandra takes jon and is gone 11-5pm and both her and robert will take jon to PW and be gone 1-6 or 630pm (depending friday traffic-ugh)

we had to change up the schedule because by wed his body was shot and he wasnt performing as well and was just SOOO tired..so hopefully this new schedule will help him!!

Happy 34th Bday To Jon!

Here is from our party on Jons bday tonite-more of the family will be here all day tomorrow to celebrate his and everyone else's bdays in february!!

Here are 34 reasons I love Jon:
1. The most Christ like man I know.
2. Honors his priesthood.
3. Treats me like a queen(something i noticed from DAY ONE!)
4. Humble.
5. Can be a friend to anyone and i mean ANYONE!
6. Can carry on a conversation with anyone- i really do mean ANYONE!
7. Has a way of making everyone feel like they are truly important.
8. I love when he calls and says "hey babe".
9. I love that he makes up stories to tell the girls and keeps adding to the story each time.
10. I love that my girls think he's "made of stone".
11. He's a good father.
12. He's a genius at the computer and anything to do with it.
13. He can fix ANYTHING! BONUS!
14. He's extremely creative.
15. His favorite drink is rootbeer.
16. I love his dark thick hair-even with the strands of grey!
17. I LOVE the way he teaches anything at church.
18. I love the way he treats my mom and our grandmothers.
19. I love that he has complete respect for my father.
20. He enjoys a good altoid.
21. He loves candy-not the chocolatey kind though.
22. He really enjoys a good quality pen.
23. He's laid back and easy going.
24. He loves to just sit in the shower.
25. He use to wear khakis and a button up shirt- ALWAYS!
26. Now he wears sweatpants and a tshirt.
27. He has an amazing voice!
28. He'd rather spend time with his family then with his friends.
29. His left eyebrow twitches if he's lying or teasing.
30. He's not competative (unless its against the computer ONLY)-he feels too bad for the other person if he himself wins.
31. He is a HARD HARD worker (career wise) anything wise!
32. He was set to be an actor for his career (until we got married and the Stake Pres felt prompted to tell him he shouldnt go that direction).
33. He's always had a 6 pack stomach.
34. He's one of those people that leaves an impression, someone your thankful you met and someone you will never forget.

Happy Bday to my man -Jon!

BUSY!

well we have just been BUSY! this schedule of jons keeps me SO BUSY!! we are just both SOOOO tired by fridays...we may have to think of switching some days around..PW told jon yesterday that he's not giving his body a chance to recoup from everythign he's doing..
he's been able to walk 23 minutes both times last week at LA which is cool..they also said yesterday he had about 30 minutes of quad spasms..i guess thats suppose to be VERY cool! so VERY COOL THEN!! rock on!!
lately jon has been REALLYYYYYYYYYYY tired...sleeping a lot..were not sure if he's fighting a cold or what..sometimes he's kind of stuffy (his nose)..so we're hoping its just that and probably a combo of him working out so much..on monday he slept right thru dinner (which isnt too quite with 4 girls! hehe) and fhe (again not so quiet with 4 girls!) he told me he remembers the opening song and then boom OUT! poor guy!!
this saturday is his 34th bday...we'll be celebrating with family and friends both saturday and sunday..should be fun!!

doing well..

jons doing well..the pricey meds seem to be working..he's wiped out today from working out so much..he walked the treadmill for 15 minutes last time and did 23 minutes today- ROCK ON!
tonite was CRAZY and LOUD-jon had his EQP meeting here at the house at 7pm, we had carpet layers installing the carpet upstairs SO LOUD, i had all the girls in bathrooms trying to get their showers in..it was a mad house! but its now almost 9pm, the carpet guys have left, the meeting is over, and girls are in bed..
tomorrow jon will be at PW in carlsbad..

Feeling better...

the 200 dollar medication is working..it BETTER RIGHT!? he's doing MUCH much better and back to himself again..he did all his workouts and is wiped now..he also was able to finish up the magazine- robert you DA MAN!!! its so hard for him, what took him 3 days to do takes him 6 weeks..we're hoping for it to get quickly printed and sent out for february..

while working out at PW last week, they mentioned to jon that he has good hamstring control..and they were surprised by that--WHOO HOO!!

well not much else going on regarding jon, he'll just rest up from the week!

Lab work in progress..

so we left at 11am to head to his dr appt at 1145am...we WAITED and slept basically till 115pm when the physicians assistant (NOT EVEN THE DR!) came in..so frustrating! we told him our dr wants lab work done to make sure the med's he's on is not ruining other organs..so they pulled blood 40 minutes AFTER that and then we finally left at 2pm..LONG DAY..
so it will be about a week before we get results back..

today jon is REALLY tired...he was up last nite 2am-430am on FIRE and in pain..poor guy..then he slept til 630am when amanda came in to begin his morning routine..he is wiped out right now on his bed...

he was called as the EQP secretary (to which he joked, "but i cant write!?") and so they will be having their presidency meetings here at our house every tuesday nite at 8pm..so he's resting up for that..

we got his UTI medication, we pulled up and they said "50 dollars" to which i said, "umm did you run that thru the insurance!?" they said "yes"..WHAT ON EARTH!?!? so each pill was 15 dollars! he ONLY has 10 of them!! YIKES!! so 10 pills was 200 dollars to which we paid 50 and the ins paid 150..INSANE! they better cure MORE then his UTI at that rate!!!

this round of UTI is pretty rough..he gets nasueated easily, cold, then burning, then cold, then burning..its been rough for him..but he's hanging in there..

well time to go figure out dinner!

Definite UTI..

well im back from the dr's..and he has a definite STRONG UTI..so he's on a new prescription and we'll go from there...so atleast its that and not something more serious...

he's been spending his day resting in bed catching up on 24..hes only on season 2!!

grateful for the power of the priesthood..

Today as I look back at last nite when Jon was suffering so much (he said it was pain like back at loma linda again)..I am grateful that he is peacefully resting, the fever broke, the BP is down his normal range again, hes not as tight and cramped up either..he slept well last nite..he says his body feels REALLY numb though today..which is different..
im drawing his Urine now to take it in to be tested for a UTI, his doctor is concerned about putting him on antibiotics again, so we will see what she says (shes going to call the urologist)..

today jon will be resting at home for the day - we dont have to go anywhere today..
tomorrow jon has a pain management appt-that doctor will be impressed that jon weened HIMSELF off of dilaudid!!
wed he will be at Cal State LA (sandra will be taking him)
thu he will be at PW in carlsbad (i will be taking him)
fri he will be at PW in carlsbad (his parents will be taking him)

Thanks to men who live worthy to hold the priesthood, and worthy to bless other lives with it- were so grateful-the days of Loma Linda started flashing back and it was a little scary for me-i knew something wasnt right..and when i had tested his BP..it confirmed to me that something REALLY wasnt right! Also thanks to families that say a quick MIGHTY prayer!!

Jon not doing well..

Jon is not doing well this evening..he either has a UTI or problems trying to come off the Lyrica medication..he's not been having good volumes of urine output, his blood pressure is high (he's typically 80/70 and its up 150/90), has a 101.1 fever and is VERY tight and his muscles keep cramping up on him...
russell santos and chad thompson gave him a blessing, ive kept and eye on him, its been a couple of hours, his BP has come down, his fever is still the same, and he's not as nauseated as he was 2 hours ago..so we will wait it thru the nite, i will take his urine to be tested for a possible UTI..

Something to Share..

push slower or faster and put mouse on picture to read caption..





Jon took me to Brazil for 17 days near our 10 year wedding anniversary..i will be forever grateful we did this, he had his accident just 3 months after...i have such mixed emotions, part of me is elated to have this photos, part of me is sad to see pictures of jon standing but mostly im just happy that we did it, have the memories and the ability to creat new ones..

well- enjoy!

Project Walk-Tuesday

again for the pictures, if you drag your mouse over the picture it will give you a caption, you can also slow it down or speed it up-jon will have his "interview" and write up ready on thursday to be filmed and they will post it on the PW website..so look for it by next week - i'll keep you posted..he wishes he had a tshirt that said the "quadfather"! hahah

tomorrow i will be taking him to Cal State LA..his session is 1230-2pm

Jon was doing great till about an hour thru his workout, then his body just sort of gave out..he wasnt feeling too well..he then remembered he had ONLY an english muffin for breakfast- THANKS for telling us at 2pm!! needless to say, we'll be MAKING him eat something or STOP for something BEFORE he gets to PW!! he came home and just crashed the rest of the evening, he woke at 930pm for a visit from our newly called elders quorum (details to come later!)and was then WIDE awake by 10pm, so he's working on his article for the magazine we're desperately trying to get out for next month!

what on EARTH!??!?!

For those who wish to visit:

starting NEXT week will be as follows-
Mondays Cal State LA 1230-230pm
Tuesdays PW in Carlsbad 1-3pm (except for the 23rd jon has a dr. appt so no PW)
Wednesdays Cal State LA 1230-230pm
Thursdays PW in Carlsbad 1-3pm

We're getting ready to head to PW today with my dad, while my mom watches the girls for me..i will take my camera and take lots of photos to share with you all..

Todd visit's project walk..Mama's SICK!

Robert and Sandra took jon to project walk...todd and celene and kids met jon there for the last 30 minutes of his workout session..jon was really surprised! Jon will do 2 days a week at PW and 2 days a week in LA..once the LA research is done, he will do 3 days a week at PW..each day will be a completely different workout..
yes, Mama's sick..i was out all day yesterday with the flu..i think im getting better, im just now very light headed and weak..

no big plans for us for this weekend - which is nice, it feels like after xmas there has been something MAJOR going on..so its nice to just be home..

Jons day at Project Walk-Thursday

lets give this a go and see how it works! If you click on the + plus button it goes thru it fast (i recommend this!) and if you click towards the bottom of the picture you can read the captions to each picture..ENJOY!

Wednesday

Jon went with Sandra to LA for the research project..he said that they put him in a standing frame and he stayed up for 4 minutes..then started getting spotty..he said it was wierd (SO different)..but way cool!
it was a quick trip- i was surprised that it went so fast-they left at 11am and were back by 4pm...he said the session was just 2 hours..NICE!

he just been resting up here at home, he said last nite he slept REALLY well and soundly..YA! he's been stuffy and he didnt have that problem last nite..

tomorrow is PW-he's excited again and curious as to what they will do..sandra again will take him to that appt which is 1-3pm...

tonite we had a friend come over and gave him a massage on his arms to help soothe the muscles..he said it was awesome!

AWWWWESOMEEE!!!

Project Walk is AWESOME!!!! Jon LOVED IT!! he got worked out so hard already! they did all kinds of testing on his movements, they kept saying "activity in this muscle, function here, trace there etc"..it was SO nice to hear that he had something everywhere!!!!! here are some pics we took...his plan is to be a permanent client there..which will mean we need to do another fundraiser or something!?!? its NOT cheap!! and insurance doesnt pay for this kind of therapy..its all cash only...ugh..but SO WORTH every penny!!!
he will do his video on thursday or next tuesday i cant remember..he's still thinking of a cool song to use..
we left the house at 1030am and didnt get home till about 4pm..so ANOTHER long day..and ANOTHER long day tomorrow and the next and the next..but worth it- jon is sooooooooooo tired and wiped now..he's getting nervous about trying to do both..so we'll see how it goes tomorrow at cal state...
his Spirits are WAY strong and REALLY high and he's feeling great!!! thanks for the extra prayers!!

enjoy the pics...

special thanks to my dad who drove again, and my mom who watched the girls and heidi for making me dinner tonite- SO HELPFUL! i feel like a mom who works now and is gone all day- its a lot of work! thank you!!!!

Testing complete

Jon made it to his testing..and he did GREAT for his first day they said!! thats good news!! it was about a 1.5 hr long visit..my dad drove us up there and my mom helped here at home..she made broccoli soup YUM AND a chocolate cake for fhe! WHOO HOO!!! i think my mom is secretly trying to fatten up jon!! hehehe

tomorrow my dad will drive us down to carlsbad and again my mom will stay here with the little ones..he has to be there from 12-2pm...

today jon has been a little sad...more towards the evening..he said its REALLY hard to not be able to move anything..it gets to him sometimes and he's never mad..just sad...he had rolled into the piano room and looked up and broke down realizing he's NEVER been upstairs to the girls' room for 10 months, he's never put the girls to bed, never seen our room, etc..its just a little hard...he also said that he use to be SOOO productive! he was the guy that took 7 classes at HS AND sports..and full loads at BYU AND working full time, he'd work LONG hours at work, first one in and last one out type thing..and now..he just simply cant work that way anymore, and if anyone knows jon..that is so difficult for him to not be so productive.

later this evening, as the girls were all wanting to sit on my lap at the same time, and me feeling suffocated as usual..he noticed and said "what can i do?" which honestly sometimes makes me think..do i need to write it out?..i asked him softly "what do YOU think you can do to help me?" ..he said.."i dont know, maybe gather them all into the office and tell them our old stories?" perfect i said..he felt like old dad jon again doing that..im so glad he was able to do that, it really boosted his Spirit and made him realize that he cant do a LOT of things, BUT he can do some of the most IMPORTANT things..some fathers arent even able to do that sometimes..

well its time to start fhe and eat the chocolate cake!!! thanks mom!!