Jon is still doing great! He continues to gain more strength and mobility in his arms and chest-he continues to move around enough so that we aren't doing pressure releases for him constantly like last year..essentially this is his schedule:
730AM Amanda the caretaker/nurse comes in and prep's him for the day
11AM on tue/thu he continues to go to project walk
11am mon/wed/fri he continues to work on the laptop
130pm he has lunch which he continues to be able to feed himself
330pm i cath him and give his medication
6pm he has dinner again feeding himself
730pm mon we have fhe which he prep's the lessons
730pm tue he has his Elders Quorum Meetings at our house and does family visits
830-930pm his good friend russell continues to come EVERY NIGHT to put him back in bed and stretch him
1030pm i prep him for the night -he continues to use and all night cath and the bed is an airmatress so he can stay in one spot and not have to rotate all thru the nite like before
he is able to use his knuckles to work any computer and is able to make and receive phone calls as well--
so as you can see life is A LOT easier then it was a year ago!!!
We no longer receive state disability-so its ONLY social security which isnt very much-we're VERY blessed to have family and the church to carry us through until we can figure out what is going to work for our family. We've been EXTREMELY blessed to have someone donate money to our family which will pay for jons Project Walk therapies. Ive been working on ways to provide income for the family during this time to help ease the burden that's before us. Along with the travel business, I've been telemarketing calls for a friend who does Reverse Mortgages-I receive a very nice commission for leads that I can provide. I have just started that this week and pray that it will be beneficial for our family-I am able to leave the girls here with jon for a couple of hours and go around the corner to her house into her office and make the 120-140 phone calls. Then I can come back and feed lunch to everyone get some laundry done and head back for a couple more hours.
the BIGGEST update is the lift is completed and working--Monday was his FIRST nite that he slept upstairs with me in OUR ROOM since march 15th 2006--its so wonderful! the things we take for granted!! He is able to sleep up there in his bed which is pushed up against out big ol' cal king bed (which i have MISSED so dearly! ive been sleeping on the couch next to him the past year). The nurse is able to do all his morning care right upstairs-he's even able to have REAL showers now which are HEAVENLY for him he says..
The girls are doing great too-its now summer- thank goodness we have the pool--the little 2 girls where their life jackets and so they all swim together like fish out there- they go in it just about every single day! On tuesday's i take them all down to the beach with other moms in our ward. Rachel got accepted into the National Young Scholars Program (its kind of a prestigeous camp for kids will excellent grades but also very good leaders-she was nominated by her teacher and the only child in her school that got in). She's been at this camp at a college since Sunday and I will pick her up tomorrow! YA!
Well that is the update on our family--we're still plugging away and pray everyday that jon will regain his strength. We certainly have our ups and downs ( a couple of weeks ago we attended one of jons cousins weddings-when the bride started dancing with her father-i completely lost it and had to put my sun glasses on--things like that are hard on me). Just last monday anna was giving the fhe prayer and prayed "that daddy would remember how to walk again so he can stand up"..both jon and i had SUCH a hard time trying not to cry! But all in all-life is SO good..we constantly remind ourselves that it can be 100 times worse then it is now..and we are so grateful to be where we are today-even if its not like it was before..it can always be so much worse..
Thank you for your continued prayers on our behalf--each month our life DOES get better--one day at a time!
2 comments:
Hooray! I'm so glad you're blogging again...it's good to get an update! I love reading how you take note of every little blessing...makes everyone else a little more grateful too! Still praying for you...good luck with the business stuff.
And CONGRATS on the lift! It looks awesome.
Hi Christina,
This is your cousin Karen Svicarovich. I am so glad to read your update because I have been wondering why you have not been blogging. I was beginning to get very worried that something may have taken a turn for the worse, but am so happy that all is well and that Jon's condition seems to be improving each week. My love to you and your family, Karen
My email is lwades@aol.com
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