doing well..

jons doing well..the pricey meds seem to be working..he's wiped out today from working out so much..he walked the treadmill for 15 minutes last time and did 23 minutes today- ROCK ON!
tonite was CRAZY and LOUD-jon had his EQP meeting here at the house at 7pm, we had carpet layers installing the carpet upstairs SO LOUD, i had all the girls in bathrooms trying to get their showers in..it was a mad house! but its now almost 9pm, the carpet guys have left, the meeting is over, and girls are in bed..
tomorrow jon will be at PW in carlsbad..

Feeling better...

the 200 dollar medication is working..it BETTER RIGHT!? he's doing MUCH much better and back to himself again..he did all his workouts and is wiped now..he also was able to finish up the magazine- robert you DA MAN!!! its so hard for him, what took him 3 days to do takes him 6 weeks..we're hoping for it to get quickly printed and sent out for february..

while working out at PW last week, they mentioned to jon that he has good hamstring control..and they were surprised by that--WHOO HOO!!

well not much else going on regarding jon, he'll just rest up from the week!

Lab work in progress..

so we left at 11am to head to his dr appt at 1145am...we WAITED and slept basically till 115pm when the physicians assistant (NOT EVEN THE DR!) came in..so frustrating! we told him our dr wants lab work done to make sure the med's he's on is not ruining other organs..so they pulled blood 40 minutes AFTER that and then we finally left at 2pm..LONG DAY..
so it will be about a week before we get results back..

today jon is REALLY tired...he was up last nite 2am-430am on FIRE and in pain..poor guy..then he slept til 630am when amanda came in to begin his morning routine..he is wiped out right now on his bed...

he was called as the EQP secretary (to which he joked, "but i cant write!?") and so they will be having their presidency meetings here at our house every tuesday nite at 8pm..so he's resting up for that..

we got his UTI medication, we pulled up and they said "50 dollars" to which i said, "umm did you run that thru the insurance!?" they said "yes"..WHAT ON EARTH!?!? so each pill was 15 dollars! he ONLY has 10 of them!! YIKES!! so 10 pills was 200 dollars to which we paid 50 and the ins paid 150..INSANE! they better cure MORE then his UTI at that rate!!!

this round of UTI is pretty rough..he gets nasueated easily, cold, then burning, then cold, then burning..its been rough for him..but he's hanging in there..

well time to go figure out dinner!

Definite UTI..

well im back from the dr's..and he has a definite STRONG UTI..so he's on a new prescription and we'll go from there...so atleast its that and not something more serious...

he's been spending his day resting in bed catching up on 24..hes only on season 2!!

grateful for the power of the priesthood..

Today as I look back at last nite when Jon was suffering so much (he said it was pain like back at loma linda again)..I am grateful that he is peacefully resting, the fever broke, the BP is down his normal range again, hes not as tight and cramped up either..he slept well last nite..he says his body feels REALLY numb though today..which is different..
im drawing his Urine now to take it in to be tested for a UTI, his doctor is concerned about putting him on antibiotics again, so we will see what she says (shes going to call the urologist)..

today jon will be resting at home for the day - we dont have to go anywhere today..
tomorrow jon has a pain management appt-that doctor will be impressed that jon weened HIMSELF off of dilaudid!!
wed he will be at Cal State LA (sandra will be taking him)
thu he will be at PW in carlsbad (i will be taking him)
fri he will be at PW in carlsbad (his parents will be taking him)

Thanks to men who live worthy to hold the priesthood, and worthy to bless other lives with it- were so grateful-the days of Loma Linda started flashing back and it was a little scary for me-i knew something wasnt right..and when i had tested his BP..it confirmed to me that something REALLY wasnt right! Also thanks to families that say a quick MIGHTY prayer!!

Jon not doing well..

Jon is not doing well this evening..he either has a UTI or problems trying to come off the Lyrica medication..he's not been having good volumes of urine output, his blood pressure is high (he's typically 80/70 and its up 150/90), has a 101.1 fever and is VERY tight and his muscles keep cramping up on him...
russell santos and chad thompson gave him a blessing, ive kept and eye on him, its been a couple of hours, his BP has come down, his fever is still the same, and he's not as nauseated as he was 2 hours ago..so we will wait it thru the nite, i will take his urine to be tested for a possible UTI..

Something to Share..

push slower or faster and put mouse on picture to read caption..





Jon took me to Brazil for 17 days near our 10 year wedding anniversary..i will be forever grateful we did this, he had his accident just 3 months after...i have such mixed emotions, part of me is elated to have this photos, part of me is sad to see pictures of jon standing but mostly im just happy that we did it, have the memories and the ability to creat new ones..

well- enjoy!

Project Walk-Tuesday

again for the pictures, if you drag your mouse over the picture it will give you a caption, you can also slow it down or speed it up-jon will have his "interview" and write up ready on thursday to be filmed and they will post it on the PW website..so look for it by next week - i'll keep you posted..he wishes he had a tshirt that said the "quadfather"! hahah

tomorrow i will be taking him to Cal State LA..his session is 1230-2pm

Jon was doing great till about an hour thru his workout, then his body just sort of gave out..he wasnt feeling too well..he then remembered he had ONLY an english muffin for breakfast- THANKS for telling us at 2pm!! needless to say, we'll be MAKING him eat something or STOP for something BEFORE he gets to PW!! he came home and just crashed the rest of the evening, he woke at 930pm for a visit from our newly called elders quorum (details to come later!)and was then WIDE awake by 10pm, so he's working on his article for the magazine we're desperately trying to get out for next month!

what on EARTH!??!?!

For those who wish to visit:

starting NEXT week will be as follows-
Mondays Cal State LA 1230-230pm
Tuesdays PW in Carlsbad 1-3pm (except for the 23rd jon has a dr. appt so no PW)
Wednesdays Cal State LA 1230-230pm
Thursdays PW in Carlsbad 1-3pm

We're getting ready to head to PW today with my dad, while my mom watches the girls for me..i will take my camera and take lots of photos to share with you all..

Todd visit's project walk..Mama's SICK!

Robert and Sandra took jon to project walk...todd and celene and kids met jon there for the last 30 minutes of his workout session..jon was really surprised! Jon will do 2 days a week at PW and 2 days a week in LA..once the LA research is done, he will do 3 days a week at PW..each day will be a completely different workout..
yes, Mama's sick..i was out all day yesterday with the flu..i think im getting better, im just now very light headed and weak..

no big plans for us for this weekend - which is nice, it feels like after xmas there has been something MAJOR going on..so its nice to just be home..

Jons day at Project Walk-Thursday

lets give this a go and see how it works! If you click on the + plus button it goes thru it fast (i recommend this!) and if you click towards the bottom of the picture you can read the captions to each picture..ENJOY!

Wednesday

Jon went with Sandra to LA for the research project..he said that they put him in a standing frame and he stayed up for 4 minutes..then started getting spotty..he said it was wierd (SO different)..but way cool!
it was a quick trip- i was surprised that it went so fast-they left at 11am and were back by 4pm...he said the session was just 2 hours..NICE!

he just been resting up here at home, he said last nite he slept REALLY well and soundly..YA! he's been stuffy and he didnt have that problem last nite..

tomorrow is PW-he's excited again and curious as to what they will do..sandra again will take him to that appt which is 1-3pm...

tonite we had a friend come over and gave him a massage on his arms to help soothe the muscles..he said it was awesome!

AWWWWESOMEEE!!!

Project Walk is AWESOME!!!! Jon LOVED IT!! he got worked out so hard already! they did all kinds of testing on his movements, they kept saying "activity in this muscle, function here, trace there etc"..it was SO nice to hear that he had something everywhere!!!!! here are some pics we took...his plan is to be a permanent client there..which will mean we need to do another fundraiser or something!?!? its NOT cheap!! and insurance doesnt pay for this kind of therapy..its all cash only...ugh..but SO WORTH every penny!!!
he will do his video on thursday or next tuesday i cant remember..he's still thinking of a cool song to use..
we left the house at 1030am and didnt get home till about 4pm..so ANOTHER long day..and ANOTHER long day tomorrow and the next and the next..but worth it- jon is sooooooooooo tired and wiped now..he's getting nervous about trying to do both..so we'll see how it goes tomorrow at cal state...
his Spirits are WAY strong and REALLY high and he's feeling great!!! thanks for the extra prayers!!

enjoy the pics...

special thanks to my dad who drove again, and my mom who watched the girls and heidi for making me dinner tonite- SO HELPFUL! i feel like a mom who works now and is gone all day- its a lot of work! thank you!!!!

Testing complete

Jon made it to his testing..and he did GREAT for his first day they said!! thats good news!! it was about a 1.5 hr long visit..my dad drove us up there and my mom helped here at home..she made broccoli soup YUM AND a chocolate cake for fhe! WHOO HOO!!! i think my mom is secretly trying to fatten up jon!! hehehe

tomorrow my dad will drive us down to carlsbad and again my mom will stay here with the little ones..he has to be there from 12-2pm...

today jon has been a little sad...more towards the evening..he said its REALLY hard to not be able to move anything..it gets to him sometimes and he's never mad..just sad...he had rolled into the piano room and looked up and broke down realizing he's NEVER been upstairs to the girls' room for 10 months, he's never put the girls to bed, never seen our room, etc..its just a little hard...he also said that he use to be SOOO productive! he was the guy that took 7 classes at HS AND sports..and full loads at BYU AND working full time, he'd work LONG hours at work, first one in and last one out type thing..and now..he just simply cant work that way anymore, and if anyone knows jon..that is so difficult for him to not be so productive.

later this evening, as the girls were all wanting to sit on my lap at the same time, and me feeling suffocated as usual..he noticed and said "what can i do?" which honestly sometimes makes me think..do i need to write it out?..i asked him softly "what do YOU think you can do to help me?" ..he said.."i dont know, maybe gather them all into the office and tell them our old stories?" perfect i said..he felt like old dad jon again doing that..im so glad he was able to do that, it really boosted his Spirit and made him realize that he cant do a LOT of things, BUT he can do some of the most IMPORTANT things..some fathers arent even able to do that sometimes..

well its time to start fhe and eat the chocolate cake!!! thanks mom!!

extra prayers..

jon seems to be fighting a little sickness..for the past few days he's had a stuffy nose and is feeling aches and pains..he was given a priesthood blessing which was beautiful and a wonder to experience..the next few weeks he's going to be SO busy, so any extra prayers on his behalf would be appreciative, especially concerning his illness..that it doesnt damper his ability to work hard at the therapies, ESPECIALLY project walk which has the MOST hope for him..

side note: yes jon did serve in osaka japan 1992-1994 for the poster that wanted to know..

keep forgetting..

i keep forgetting to post updates on jon here..sorry about that- things have just been crazy ever since the girls got out of school, then xmas, then OC everyday back and forth, then chad's house up north, then preparing jon for the next few weeks here..busy busy busy as always!

jon is doing well..he worked with his dad ALL day on friday- WHOO HOO! Today jon has been trying to work on another article for the magazine..he's been FREEZING cold today..making him really pretty miserable..he hasnt been able to take one of his medications..lyrica..and im hoping that thats why..i was able to get more today from walgreens..so hopefully he'll be better again..other then that he seems to be okay..we were worried about skin sores/pressure sores from the trip..but his skin looks great..

tomorrow we are heading out to rancho santa margarita for a family baby blessing, todd and celene's (maxwell) which starts at 11am..which you know, means mom has to prepare EVERYONE! ive got everyone bath'd, and church clothes set out INCLUDING the shoes (that can NEVER be found on sunday), and their change of clothes after church to play in..i still need to go gather jons clothes and shoes and then get myself ready..ive realized it always takes SO MUCHHHH LONGERRR to do anything here...longer to prepare, longer to get in the truck, etc..

this next week jon will have testing at Cal State for the research project on monday, my dad will drive with me and jon while my mom will stay here to help with the girls, on tuesday my dad will drive with me and jon again (and mom will stay with the girls)as we take him to carlsbad for his FIRST project walk day..we can HARDLY wait! jon says he's REALLY excited to meet his "new quad-peeps" and to let them know he's the "quad-father"..lovely i know. i think he should also wear his "i do all my own stunts" shirt- what do you think!?

WHEW!! what a morning! and its only 8am!!

Well it's now already January! Our family is hoping for a better year and MUCH improvement for Jon! Ive spent the past 2 hours cleaning up throw up and diarhea AND on top of that just when i think i have things under control, the sewer decides to back with everything i JUST CLEANED UP!!! UGH! so out to the garage i went and managed to get it working again...seriously i need to be paid for my hours of sewer/plumbing service i do here!!!! all this and its only 8am!! needless to say, the girls are LOCKED and CONFINED to their rooms (of course with laptops and video games to keep them there!)

We had a GREAT xmas- I wheeled in Jons bed into the front room to enjoy xmas together-the girls had a great time as did we.

We then all packed up and traveled back and forth to OC for the day to spend with Jons family.

On Friday the 29th all the Hales clan left for Chad's house in Danville-here are some pics of that time we spent there.

One pic is of all of our BLACK cars- we joke that Robert's jag is the president and we are all his body guards- except for sandra's WHITE FORD!?!?! what on earth!?!? heheh just kidding sandra- just make sure your next purchase is ATLEAST BLACK! haha

Here is one of Kristi's family (Brittnay was baptized up there). Aden (the oldest grandchild-Chads son-was beind ordained a deacon)

Here is also some pics of Kelly's RAGER new years eve party-a chocolate fountain! Need I say more!! She had an awesome spread and we were stuffed!

Lastly is a picture of ALL the grandkids from oldest to youngest! AMAZING that we even got this picture taken!!

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Starting today Jon will be VERY VERY BUSY!!! From now until the 18th he will have to either be in LA for the research project or Carlsbad for Project Walk. I had a meeting with both sets of parents and they have worked it out that someone will either be here to take jon or be here so i can take jon- WHEW what a relief!! After the 18th I'll have a better idea of how much jon will do and what the hours will be etc to get a concrete plan in motion-Jon is REALLY excited to be doing something active! He currently is completely OFF of the dilaudid and coming off the baclofen =which is also great news. He was also able to take his FIRST shower since March 16th! After MUCHHHHHHHHHHHH persisting on my part and some lifting by his brothers, he finally got in. Of course, after he got in he didnt want to come out! (he typically just has a bed bath)

So all in all =good news! We enjoyed xmas- hope you received our xmas letter and photo of the family-keep praying for improvement for jon!