Monday, July 31, 2006

Monday..

Today was a good day...jon slept well last nite...he didnt wake up burning like he usually does..im not sure if this is because i gave him his meds at 430am instead of 330 or 4am?? he seems to ALWAYS be FREEZING though!!! he did take his BP medicine..only he just took HALF of it..sadly its ONLY .5 to begin with!! oh well..poor jon is just not a drug taker of any sort!! i think tomorrow he'll go ahead and take the actual entire pill...it didnt do much for him anyway..he slept a lot of the day again..if im not right by his side talking or having him do something..he'll fall asleep..i really hope its because of his BP?? i dont know?? im VERY nervous about his presentation and all that that entails...he gets SO winded and tired out when he talks so much..and his thing is going to be 45 minutes long!! YIKES!! we're going to have to spend the nite in a hotel somewhere there in LA on sunday nite..the speech is monday the 18th at the marriott at LAX..its just too much to get jon totally ready AND get all the way out there with traffic by 730am..so we'll have to stay in a hotel..i think sandra is going to help watch my girls or my mom..i'll need to get that taken care of soon..
We did make it to PT today..jon came out saying "man i cant even do the simplest things anymore-its crazy!" ...poor guy..
my mom came out today to help for the day too..she swept my floor for the THIRD time today-its amazing how FAST it gets dirty with 4 kids!! she also started laundry going and hit albertsons for me..SO nice to have help like that!! it was her bday today too..all of her family (there are 10 siblings) kept calling her..i finally started answering the phone (Nancy's answering service)..it was funny..
For FHE we rented Highschool Musical and the girls loved it..during the singing, all of a sudden sarah started breakdancing on the floor! we were TOTALLY IMPRESSED! she could ACTUALLY do it!!
well its not even 11pm yet- which means im going to bed early - SO NICE! tomorrow morning im training ANOTHER caretaker for Jon..we'll see how it goes-- i hope she likes us and we like her and it works..i cant BELIEVE ive actually been doing all of this for over 3 weeks now..it will be nice to get some help with his care!

Sunday, July 30, 2006

quiet sunday...

Today has just been a quiet sunday for us all..jon is still really tired..he actually asked about his blood pressure medicine..he's yet to try it though..hes still resting in his bed..i hope to get him into his chair today...
the girls are HAPPILY all playing together- its amazing that all 4 can actually be nice for a couple of hours and play well together!! i hope Heaven is like this!
I for some reason had a REALLY hard time last nite...as i layed next to jon in his bed i had noticed he was really sweaty on his neck and shoulders and face..i quickly looked at his urine bag..it had a little urine in it..but he shouldnt have been having signs of dysreflexia since hes constantly draining..i was beginning to calmly freak out..i quickly took his BP and it was up to 125/90..which i know is still good pressure but for someone who's always at 87/57..thats a jump! so i layed there and told him i'd just keep watching him..he had been sleeping for 1.5 hours by the time i finished everything and crawled in next to him..after about 15 minutes the sweating subsided..man...its so hard! i feel like im constantly making sure he's not going to die..its so hard to live a life like that and how SO MANY things could go wrong and end in a result i do not want..which makes my mind start thinking..i think the weddings also have been hard on me..its like i cant even remember what it was like when jon was walking and healthy..those memories are foggy and fainting..im SO thankful i have our wedding video to watch and our wedding photos and other things..i feel like ive been living this life for 10 years already..instead of only 4 months...as i layed next to him i looked at the scar on his neck and just lost it..i kept thinking..jon and i made all the right choices...how did our lives end up like this? then a soft answer came to me as tears rolled down my face...quietly..trying not to wake jon..the answer was "i need you help" ..i know it was HF telling me in that quiet desperate moment.."i need your help in building the Kingdom of God"..i was thankful for that moment..
after a couple of phone calls i finally fell asleep at 130am...to wake at 330am to help jon with his meds and the routine that goes on in the middle of the nite..

Well we have no big plans for today..just taking it easy and enjoying the children being home with us..i cant believe in a few short weeks theyll be back at school ALREADY! the summer went so slow and so fast at the same time! i guess being that our day doesnt really start till 1230pm may make it seem like its going so fast...

Thank you for your continued prayers and service thats always rendered unto our family. We're so grateful for each and everything that happens to lighten our burden. How blessed we all are in times when there is so much ugliness in the world around us we can still be encircled in the Lords work here on Earth. Thank you.

Saturday, July 29, 2006

ahh man!

ahhh man! i wrote a thing on here..only it got deleted! RHGHGH
i did want to leave seth and katie's link to the website that has some of their wedding photos- we all watched it on our computer together and were AMAZED at literally what a good job they did!!

http://www.amelialyon.com/slideshows/Seth_Katie/ if you click on the box with all the black boxes on the RIGHT side of the box with the note in it..it will show the pics one at a time..the photographer has it going with music SUPER fast so its hard to really see all the pics..so first do it with music then do it slow..

We had all of jons family here to swim and bbq and sing happy bday to sandra..it was great! jon did well today - he's still very tired..i think im going to talk to him about trying his blood pressure med to raise his blood pressure..its typically at 87/54...before the accident it was 112/80...

well i think that was the jist of what i had written before it got deleted!

Friday, July 28, 2006

caught in a moment...


I noticed a big package last nite as we arrived home..i just now opened it and much to my surprise was this framed picture..
I found myself "caught in a moment" in time..as i looked at this picture..and couldnt help but notice how much this man looks like Jon...ive been quietly crying for the last 20 minutes...THANK YOU to Uncle Gary, Aunt Peggy and all of our dear cousins from Orem, Utah..this is unbelievable and so very touching..thank you.
This picture puts this trial into a perspective that is sometimes hard to maintain..and we thank you for helping us to find that perspective..
I dont know what else to say about this picture other then ive been "caught in a moment" of time in where the Spirit I feel and I cannot deny. I am touched by HF's pure love for me as his daughter and pure love for jon as His son. How blessed we are to be encircled and enveloped in Him. I am so incredibly grateful for moments such as these when the Spirit is so strong and continues to testify to me..life has purpose and meaning and thus so do the trials that we are in..even the one of this magnitude. Im reminded of a poem that Pres. Hanson shared with me at the temple in a quiet moment..it was called "Detours" and the writer wrote that she was on a path..and it took a detour..and as she ended her detour and came to the end..she looked around and noticed that at this very wonderful place she had finally come to..she turned around and saw that there WAS NO ONE WAY road..they were ALL detours..
I am grateful for a loving HF and for His Son and what He has done for mankind to provide us with the opportunity to strengthen ourselves and become like Him to be able to return to live with HF once again as we did before.
I always speak about the word "remember" and the significance of that very simple word..i remind myself once again of how i have just now "remembered" what it feels like to feel the Spirit and to have it bare witness to me of a loving living HF and for that I am truly grateful and edified..
Isnt life beautiful when were "caught in a moment"!

possible caretaker..

well it doesnt look like we'll be able to keep the caretaker that came wednesday..he didnt show up today..and he got another job that is 10 hrs per day vs the 3 that we needed him for..
SO..the agency has sent me a new girl her name is Amanda and she is from Mira Loma and she can only committ to tuesdays and wednesdays..but then it will go to 3 days a week and then to 4 days a week and then by september should be every day..because she currently has a part time job she's ending and winding down..SO she'll be here tuesday so i hope it goes well! the agency owner who is LDS and has been SO helpful to help me find someone said she is young and tall- so hopefully she can help me out a lot!

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